Confused!: I've been experiencing pain in... - Endometriosis UK

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Confused!

Beckys1991 profile image
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I've been experiencing pain in my pelvic area, lower back and abdomen for around 4 years with no joy finding out why. Last year my periods also became very irregular (I skipped several months) so I sought help again. In April '18 I saw a gynae who suspected PCOS so sent me for an ultrasound and blood tests to test hormone levels among other things. During the scan, the technician said she could see signs of PCOS but that the blood tests would be more "conclusive". In October, I went back to the hospital and saw a different gynae. He ruled out PCOS because my blood results were fine and I didn't have visible hair on my face. He said he wanted to do a hysteroscopy to rule out polyps. During that consultation, I gave him a list of my symptoms which he took and wrote next to each one what could be causing it (this included endometriosis, PCOS and IBS). Last week I had my hysteroscopy, now this is where things get more confusing. The procedure was fine, no polyps or other problems were found. At the end, I asked the gynae what it could be, he said "probably just a hormonal imbalance". I thought that was very strange considering my blood tests were fine. I asked about endometriosis and he said he "hadn't even considered it". When I asked why, he said because I didn't have pain during sex or pain going to the toilet. I said I actually did have both of those (they had been on the list I'd given him during an earlier consultation). He's advised I take the pill for two months and see if that helps. If it doesn't, I should go back to my GP who'll refer me to him again at which point he might do a laparoscopy.

I just wanted to know if anybody else has had similar experiences? My sister has PCOS and I'm convinced I might still have either that or endometriosis. Should I ask to see another gynaecologist? Sorry for the essay guys!

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Beckys1991
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thelordsanger profile image
thelordsanger

my wife had the opposite problem her tvuss came back clear but did not tell her said you need to go for a biopsy to make sure its not cancer scared the crap out of her i asked for a copy to find nothing wrong any way she is going for a hysteroscopy under GA to see if there are any lesions ect only found out about lesion 7 days ago apparently %50 are missed on tvuss but be careful of outpatient hysteroscopy they CAN be painful facebook.com/HysteroscopyA/...

introuble profile image
introuble

Hi,

I’m sorry

Did you have constant lower abdominal pain?

Beckys1991 profile image
Beckys1991 in reply tointrouble

Yes. Lower abdominal pain, back pain and bloating were my 3 worst symptoms I'd say. Pelvic pain continued through my first couple of weeks on the pill (obviously then got worse when I had the hysteroscopy) but now has improved. Back pain and bloating have improved too. I'm just about to start my second month on the pill after a 7 day break.

introuble profile image
introuble in reply toBeckys1991

What pill did he prescribed you?

Are you working? How you cope with everyday actions?

My pain similar to you, constant pain 24/7

I just took pain killer..

I’ve done hystreocopy to remove polyps.

My dr doubt i have endo or pid

Right now I’m thinking about PID!

Will be scheduled for MRI next week

Beckys1991 profile image
Beckys1991 in reply tointrouble

The pill I take is Microgynon. I work full-time yes and usually take painkillers or bring my hot water bottle to work. The last period I had before I started the pill, the pain was unbearable, nothing would work to relieve it. Luckily it was a Saturday so I could just stay on the couch all day, but it's difficult trying to motivate yourself when you're in so much pain.

I'm sorry for the trouble you've been having, I hope things become clearer for you very soon!

introuble profile image
introuble in reply toBeckys1991

Hugx :)

I hope one day you will find answer to your pain..

When will you schedule the laparoscopy?

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