Has anyone experienced overactive bladder?

[xsoph_louise]

I suffer alot with always needing the loo. No matter how little I drink! I can go, then needs another week a few minutes after? I've had all blood tests done to rule ot any kidney issues, I'm 21 and quite worried about it really. I don't see my gyno till April!

[AllthatGlitters]

Me too. It’s ridiculous and I can’t hold it on. It’s an urgent rush for me to get to a toilet. I got a lap, hysteroscopy and cystoscope however nothing showed as to why I would be having the urgent need for the toilet.

Never use to be like this .....

x

[xsoph_louise in reply to AllthatGlitters]

It's a nightmare isn't it! I thought it was just because I drink alot of water, but even on days when I don't I'm constantly needing a wee!

I never used to be like it, soon as the urge comes i need to go! Just like you

X

[Vickysponge357]

Hello, yes since the onset of my pelvic/back pain in November 18 when I began to see the GP I was having some urinary symptoms. I felt like I just couldn’t empty my bladder so I was having to keep going back to the loo so frequently but actually passing a substantial amount of urine each time.

My GP first believed that I had a kidney infection as there was presence of blood in my urine (but no sign of infection) so started me on antibiotics, tests then came back that there was no infection! The next gp I saw believed it was kidney stones so prescribed pain relief, a few days later I was in absolute agony so off to a&e I went and a CT scan showed no kidney stones and that everything inside looked just fine! But they retested my urine and there was still blood.

The urinary symptoms kind of come and go now, but I have noticed I’m not going back to the loo so frequently as I find I’m just sitting on the loo longer and changing positions to get it all out!

GP tested urine again last week to find there is still urine.

I’m still waiting on diagnosis but I strongly suspect that maybe there is some endo on my bladder causing these issues.

[xsoph_louise in reply to Vickysponge357]

Oh my life, sounds like a lot of trouble! This is what's bugging me, I've got normal bloods so it rules out anyhing to do with infections and so on. So I'm starting to think is endo on my bladder to? x

[Krithika in reply to Vickysponge357]

I had a similar case and got all the urine tests done but it turned out to be endo on my bladder and the problem is gone after excision surgery. I suggest seeing an endometriosis specialist who does excision surgery, not ablation, if that’s something you may be interested it. Otherwise, I am told there are natural ways to relieve the symptoms such as diet, herbs, movement. I would check out the Heal Endo website for anyone with endometriosis as it has a lot of useful information not found anywhere else.

[xsoph_louise in reply to Krithika]

Well I went to the doctors last week due to blood tests unrelated. I did a water sample and that got sent off for analysis, it came back clear. I have no idea what to think? I'll have to have a look into herbal remedies! Thank you x

[clairereed]

I too have had all these symptoms and also have been diagnosed with endometriosis. the bladder issue became such a big deal. after repeated trips to the gp , I was referred to urinology gynaecologyand was diagnosed with interstitial cystitis and paimful utethra syndrome. after having an operation on bladder (bladder distention) all symptoms have gone after years of suffering.

[Kdon91]

I have this problem! I’m so desperate to go and when I do go there is such a tiny amount. Then I have to go repeatedly so close together. I have a ultrasound on my kidneys coming up in 3 weeks and still waiting for a laproscopy for a dermoid cyst and to see what else is going on!

[xsoph_louise in reply to Kdon91]

I am exactly like this. I'll go normal, like for a big wee then I need to go again a bit after but it's only small dribbles? Yet I still can't hold it!

Good luck with your ultrasound, hopefully all Is well with you! X

[Tanyac2017]

Hi. I had this. And my GP said I had an overactive bladder probably due to my endo. He told me to drink lemon juice but to also decaf everything so decaf coffee tea md no caffeine in coke.

This actually helped and I didn’t seem to go to to the half as much.

I now have had a full hysectomy and systems have all gone. Even though I still have decaf everything.

I would try this. Hope this helps.

[xsoph_louise in reply to Tanyac2017]

I'll have to try this! I'm not a big coffee drinker, I have one cup a day in the morning, then I'm drinking water all day! Lemon juice seems interesting!

I'm only 21 so a hysterectomy isn't something I'd be able to get, I'm glad yours is better though x

[Krithika]

Yes I had lots of bladder issues for 1.5 years until I had endo excised from my bladder in december. Now I don’t have those issues anymore. I hear there are natural ways to help too

[StefaniaJW]

You need to get a urine culture test ASAP. Your GP can give you the prescription. If that's negative, it could be interstitial cystitis. I suggest you go to a urologist first.

I find it ridiculous that you cannot see your gynaecologist before April.

Anyway if it isn't interstitial cystitis it could be endo on the bladder. An expert endo gyno will tell you with an ultrasound or MRI.

[Daisyjuke]

Hi! Ever since I got endo I feel like I have a constant UTI feeling. Needing a wee suddenly and constantly.

[EndoEffect]

I have suffered with bladder urgency and an overactive bladder since being diagnosed with endometriosis. I tend to go a lot during the night especially (around 6-8 times per night average). And I occasionally have tiny leaks during the day, which I don’t feel when they happen. Issues with bladder or bowel can definitely be linked with endometriosis. Keep a diary of how often you’re going. Even if it’s just a tally chart each day. Then you can show your consultant when you next see them. X