Pain

[Somethin]

hi. Does anyone else get pain in their back and coxis(not sure if ive spelt that right) from ending?

[Somethin]

I mean, '...from endo'

[Eclarke4]

Hiya! I suffer from coccydynia (pain in the coccix) and I asked the same question could it be related but my doctor and physio said it’s very unlikely. I had acupuncture which sorted it for a while but it’s back again so back to the docs next week it is! Might be worth asking your GP about it x

[luthien in reply to Eclarke4]

I'm looking into acupuncture; how do you find a good place that does it? Does it hurt? I hate pain!

[Eclarke4 in reply to luthien]

My GP referred me to my local physio. It doesn’t hurt I was very surprised, apart from when it’s the time of the month it’s sensitive and hurts a little but nothing compared to the coccyx pain!

[luthien in reply to Eclarke4]

my local physio doesn't do acupuncture, I guess it needs to be specialist ones. My GP hasn't mentioned it either. Perhaps I'll just go have a look!

Yeah anything causing pain hurts more around my periods; I've noticed that with the friction burns from holding moves on the pole during my pole fitness classes

[Maxi72]

Hi there

Yes, I had back pain and coccyx pain for years before relating it to endo. After a laparoscopy removed all visible endo my symptoms suggest endo in places that are surgically inaccessible. I am on Prostap injections with HRT long term. When the injection wears off my coccyx pain returns. You’re not imagining it. Definitely tell your GP/Gynae. Just because it’s rare doesn’t mean it can’t happen!

X

[luthien]

Yes!

I have developed lower back pain during the time between my two laps for removal of endo which I now see a physio and a movement specialist for, they have both mentioned that the ops and the endo itself are the cause of the back pain; the ops on the core and the endo affecting all the ligaments inside that hold stuff into the pelvic bone – this results in a weaker core and the lower back compensates. We are working on improving my core through focused exercise and mobilising my lower spine to help future recovery.

The key areas affected are the lower back, sacrum, coccyx, glutes, piriformis (bum muscles) and hamstrings. This tightens up all those muscles causing referred pain as the other muscles compensate resulting in; shoulder pain, neck pain, upper back pain, thigh pain, calf pain and sciatic like pain.

Both physio and mobility specialist say they see a lot of women post puberty, and during / after pregnancy with back pain; it's due to weakened core muscles; the back compensates and so our posture changes. Even small changes can cause lots of pain. If left untreated it only gets worse; as I've found. I left it 8 months (as GP wouldn't touch it) and now it's going to take a good 6 months of fortnightly physio to correct it, improve my spine and core strength, and reduce muscle inflammation.

My honest answer is ignore the GP and look at physio yourself - GPs have a list they need to run through and physio isn't on their immediate list as it's a slow process. Paain management is quicker so it's higher up their list but not long term - that doesn't matter as it means you'll keep seeing them and keep needing a prescription. My GP said first wait four months and see, after that suggested codeine once a day (I'm not keen on painkillers to mask pain) then said I can see physio through the NHS (they just asked questions via email, and sent me a list of exercises), I'm now seeing a physio (paid for myself) GP needs to wait for 10 sessions and a physio report (any physio) before referring me to a specialist (as that means no improvement), then the specialist may look at other options such as surgery (really not keen on that idea).

Initial consultations with physios are usually free so it's worth calling your local ones and asking. My fornightly consultations with my movement / mobility specialist is £45 per hour and includes a run through of daily exercises to do plus can message / text if I'm having problems / concerns. I also do core strength classes -pilates or yoga classes would work just as well - helps to improve core focus and strength. After just two sessions, daily exercises / stretches and once a week core classes I've already noticed an improvement in the coccyx pain, that previously I needed so many painkillers for.

Hope that helps xx

[Somethin]

Thank you

My lower back pain and coccix pain only happen when im on my period or ovulating so that's why i was thinking it was possibly endo related as i have endo xxxx

[luthien in reply to Somethin]

it's all related - the core and stuff round the front gets all swollen, inflamed, spasm pains, so the lower back compensates (often it becomes sore too) - it's why we get back pain too around then....

[Hidden]

Hi

I had really bad lower back pain, and was told after my surgery that the extent of disease on my bowl and ligaments/nerves in pelvis was what was likely to have caused me the bulk of all the pain I was experiencing. I had excision surgery and it took a few months for things to heal, but it made a huge difference as was able to get properly mobile again as reached the stage where pain relief did nothing for me and was struggling to walk. Have you spoken to an endo specialist? Hope you find some relief from your pain soon.