Finally got an appointment with Endo centre after letter of complaint!

[weekari]

I posted a while ago with the letter of complaint I sent to the head of my local endo centre. My case is a bit unusual and I've been unhappy with the treatment I've been offered and how my case has been managed. I originally just wanted to meet with the endo consultant who my gynae (general with specialist in oncology) had consulted with regarding my case. They were saying I had severe endo and a strange large fibroid/tumour thing and because they were saying it was so unusual and complex, I wanted it explained to me by a specialist before I agreed to the treatment offered (Zoladex). At the beginning of Sept, I phoned the endo dept and requested a one off appointment but was told they couldn't do this. So, I requested my medical notes, got a lot of help to write a letter through an endo support page on facebook, which was sent off about 5 weeks ago. The endo centre secretary called me today to say there's a letter on it's way and I've been offered an appointment 10th Dec. It's been a long, tough struggle just to get this far but I'm glad to finally have an appointment that I hope will finally give me a proper explanation so that I can make an informed decision regarding my treatment options.

I also have an appointment with my general gynae on 6th Dec, with an ultrasound appointment before hand. (gynae appointments are apparently like buses!!) I'm planning on still going to this, even though I don't have much faith in him and have essentially made a complaint about him, which means it'll likely be awkward. It's not in my nature to complain and make demands like this, so I'm very uncomfortable about the whole thing.

I share this to encourage anyone who knows they're not been treated properly or who hasn't been fully informed about their condition or treatment. It's a lot of work to complain and fight, which is doubly hard when we're so ill but really, we all deserve to be treated with respect, compassion and as capable adults. We don't need things sugar coated and dumbed down and we need to be as informed as possible so we can make decisions about our treatment options. My letter is on this site in one of my posts a few weeks back, if anyone can use it as a template.

I've been having a really hard time coping with everything of late and it's good to feel like *something* is happening.

[Sunflower1968]

Pleased for you and I truly hope you receive the treatment you need and support you deserve!

[AllthatGlitters]

Well done and fantastic news for you x 💕

[Sarahlouisex]

That’s great to hear pleased for you, hopefully this is a step in the right direction for the support and treatment you need xx

[Littlebirdy34]

So pleased to hear this, glad you're ok x

[JL0ck]

This is great news!! Good for you. I really hope you get the help, advise and treatment you need and deserve. Let us know how you get on. Sending lots of love x

[Purple500]

Good news, the best advice I have got so far is to keep a diary. You just go through so many hospital appointments and it's hard to remember all the details. Hope this is of some help.

[justokme]

How did it go?

[weekari in reply to justokme]

It went really well. The consultant was very good and took time explaining everything and what my options are. I'm now under the care of the BSGE centre which is a huge relief. I posted about it in detail just afterwards.

I'm having surgery in 4 weeks. Hopefully on the road to healing 🤞🏻