Endo and fatigue

[Shannon190595]

Does anyone suffer real bad fatigue with endo? If you do why do you do to help it. I’m beyond tired I can’t function!

[Manfredi1234]

i get ridiculously tired especially when i’m on my period i’ve started taking Feroglobin capsules and they seem to improve it abit.

Hope this helps x

[Shannon190595 in reply to Manfredi1234]

I’ll give those a go, thank you! The doctors are rubbish at helping!

[Manfredi1234 in reply to Shannon190595]

tell me about it🙄 my doctor is still convinced i’m just being dramatic over period pains

[Shannon190595 in reply to Manfredi1234]

No way!! Have you had a laparoscopy to find endo?

[Manfredi1234 in reply to Shannon190595]

nope my gynecologist doesn’t want to because i’m young and she doesn’t think it will be developed yet so she won’t find anything so currently taking the pill until it gets worse enough for a lap 😂 doctors don’t understand

[Shannon190595 in reply to Manfredi1234]

Ah that’s understandable, before I was diagnosed with endo my doctors just thought I was being pathetic and overreacting about periods too!

[Sfr204]

I am always tired and now having an endo diagnosis has made me feel at least there is an explanation!! All I can suggest is good old fashioned sleep, rest - and not putting yourself under too much pressure. Sounds silly and I don’t believe we should suffer and compromise our quality of life, but on the other hand being sensible and having a good balance of work/rest/play for me really reduces my symptoms

[Shannon190595 in reply to Sfr204]

Yeah, I have a very physical job which makes it much worse and waking up at 4.45am and going to sleep at 9pm. I’m currently trying to find a new job which will be office work

[Sfr204 in reply to Shannon190595]

Office work sounds the right way to go. Good luck with your search x

[Starry]

Hey there.

Fatigue can be part of endo symptoms but there are lots and lots of other things that can cause it and it should be taken seriously by your gp if it has persisted over 3 months.

Its worth getting levels of vit d, b12, iron and magnesium and zinc all checked.

Thyroid issues should be tested for too.

My iron , zinc and vit d were all low.

It may also be worth running down the list of ME symptoms on action for ME or ME association websites and querying that if it is a close match, as it is an associated condition with Endo. There are specialist referral centres you can vet referred to for a confident differential diagnosis in complex cases. I was finally diagnosed with ME in September after 2 years of doctors writing it off as due to endo. I developed it 20 years ago after glandular fever they believe and unfortunately my endo surgery followed by viral meningitis triggered it all off.

In terms of management. A few ideas to explore...

A healthy diet varied with lots of fresh veg and especially avoiding sugar and highly processed carbs which cause boom and crash in blood sugar in favour of low GI foods can be helpful.

Good quality sleep is medically far more important than people realise so good sleep hygiene, avoiding blue light in the evening etc is useful

There is also a good guide to "pacing" fatigue management technique on the action for ME website which is about managing your activities to help avoid exacerbating your symptoms.

Relaxation is also important plus avoiding stress and triggering the symptathetic nervous system which raises harmful cytokine levels. I struggle with mindfulness and meditation myself tbh but am getting on with 10 minutes each hour of listening to nature sounds

Hope this ramble gives a few ideas, but we are all different so its about finding what works best for you x

[Shannon190595 in reply to Starry]

Hi,

It’s been happening for the past 7 months I’ve been back and forth to the doctors. Had all my vitamin level checked and thyroid. They checked everything but can’t find anything at all. It came down to my job, I’m a handprinter so I have a very physical job, I wake up at 4am everyday and travel 5 hours a day to and from work so I understand that I’ll be tired from that. But I’m even ridiculously tired on the weekends too! The doctors have just said it’s my lifestyle that’s making me tired. I’m currently job searching so hopefully that will help!