Hi everyone,
This is my first post on this site, I have been experiencing severe lower left sided abdomen pain along with back pain, nausea, fatigue and a constant frequency to urinate for about a year and a half now and am still no closer to a diagnosis. After having a clear ultrasound, multiple clear blood tests, clear sexual health screening and clear urine samples I was referred to a gynecologist. I had my appointment last week and was told that my symptoms don't sound like they're related to endometriosis as I have an implant (That I've had for about 5 months now) And this is supposed to stop all symptoms of endometriosis. I was also told that my symptoms sound like they could be bladder or kidney related and was told to try some tablets for 2 month and go back afterwards to see if they help at all. Having just received my prescription I've realised I've been given mebeverine which is used to treat IBS! I have never had any symptoms of IBS apart from the abdominal pain and my doctor is very aware of that. I'm unsure as of what to do next as I don't particularly want to take these tablets for two months knowing I don't have IBS.
This is very frustrating as I've waited 3 months to just be given tablets that aren't going to help and no insight as to what may actually be going on!
If anyone has experienced anything similar or has any advise I would really really appreciate it!
Thank you
If there was something to “stop all the symptoms of endometriosis” we’d all be on it! We don’t half get told some rubbish with this condition. Unfortunately your story is the same as most people being passed around with no diagnosis. Can you push for a laparoscopy to rule out endo ? that’s the only real way of knowing. x
Hi Jules,
Thanks for your reply. At the appointment he was very certain that I wouldn't have endometriosis due to not having periods anymore but I've read so much on this site about people being put on all sorts of contraception and still having symptoms. He said I could go back in two months and review the situation and maybe have a laparoscopy done. However, I'm not sure I want it done by him as he's given me tablets for a condition I have no symptoms for and told me there's no way it could be endo related (that I'm not too sure of but I'm starting to wonder what else it could be)
Do you know if I can choose who to be seen by and maybe be referred to somewhere else?
I think the fact that people who have had a full hysterectomy still have endo shows that you can get it despite being on treatment or not having periods. (Personally the mirena coil has worked wonders for me). I think you can ask for certain specialist, I changed at one point as I wasn’t getting anywhere. You need a specialist not a general gynaecologist. It makes such a difference to have someone you have faith in and who takes you seriously. I hope you get to the bottom of things soon.