Pain after surgery

[groggy-froggy1]

Hello all,

I’ve recently had my laparoscopy at the beginning of March 2022, I’ve been diagnosed with widespread endometriosis.

I’ve been in agony again and went to A&E at the end of March, the pain I was experiencing was the usually pain felt before the surgery. The keyhole insertions healed completely fine and my bowl movements have hurt a little and I’ve been bleeding from the back passage.

I’ve rang up the GP and I feel like I’ve been palmed off again with Amitriptyline as painkillers and the hospital still hasn’t called me back after surgery. I’ve got a letter in the post saying they will call but they haven’t.

I’m still in a lot of endometriosis pain, I don’t know what else to do. I’ve gotten surgery, I’ve gone to A&E and I’ve contacted the GP and I’m STILL in pain. What else can I do? I’m also telling the receptionist at my practice and they keep telling me to email yet I still don’t get a response even for requesting another prescription! It’s all so frustrating. I’ve only just turned 18 and doing this all on my own makes me feel so stupid, I’ve never done this before…I don’t know what to do at this point. Am I being unreasonable?? What am I doing wrong?

[Enilorac1984]

You're not doing anything wrong! Where are you in UK? That's awful that the hospital haven't been more in touch after your surgery. Do you have any money saved up? I wonder if booking a private consultant to go through your options might be wise while you wait for the sluggish NHS to get into gear. Have you tried hormone treatment yet?

[groggy-froggy1 in reply to Enilorac1984]

Thank you, it’s comforting to know that I’m not being irrational. I’m in England currently. Unfortunately I don’t even have penny to my name, I’ve applied for student loans so I won’t be able to borrow and I’m only 18 so I don’t have any savings so unfortunately private isn’t an option which is so frustrating as I know it would progress everything so much faster.

I’ve tried almost all the hormone treatments, the pill, combined pill, the rod and now I’ve had a IUD fitted. I know this isn’t a helpful response but I’m really stuck on what to do at this point.

I’ve been dealing with this since I was around 13, I’ve given time for all these hormones to take effect but they’ve not improved anything.

I just don’t know what my next move is, do I keep pestering my GP again?

[Enilorac1984 in reply to groggy-froggy1]

I would go hard on holistic therapies. NAC treatment? Detox. Anti-inflammatory diet. I know it seems simplistic but its the only way I know to take back any control.

[groggy-froggy1 in reply to Enilorac1984]

I will definitely do some research about it, I wouldn’t have even thought of doing these things. Super helpful. Thank youuuu! x

[TheStruggleIsReal29]

I’m sorry to hear your still in so pain after surgery!Waiting for follow up appointments take forever.

If your are in that much pain though you need to keep onto the GP and push to be seen that is their job and what they are there for.

Do you find the Amitriptyline help as painkiller? If not get onto your GP and tell them you need to come off them now as they are not touching the pain, I took them for 2 months with zapain 500/30 2 4x a day and naproxen 1000mg a day, none of that touched my pain and I demanded they change my medication as I had been fobbed off the last 2 years waiting for surgery with zapain and naproxen that didn’t work so they tried the Amitriptyline and nothing, I’ve just been put on pregabalin past 2 weeks and it does seem to have eased some pain but I haven’t had a period yet so yet to know if it will actually help with that pain,

Was you put in contact with an endometriosis specialist nurse before your op? I can text mine and she’s pushes for the specialist gynaecologist appointments and point me in other directions I can try to get help,

It’s sad but with womens health, we need to push more with GP otherwise we are not heard or overlooked like you’ve had surgery you should be fine now when that not the case, and they can feel so intimidating when you are young I’m 28 now and only now past 2 years started standing up to be heard, ring the doctors every week if you have to untill someone hears you, so all I can advise you is you know your body and if your in that much pain don’t take no for an answer they can’t just fob you of when your in pain like that,

Take care!

And I hope you get some help for the pain!