I don’t know if I can keep going on... - Endometriosis UK

Endometriosis UK

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I don’t know if I can keep going on...

nicoledacinto profile image
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I don’t want to sound dramatic, but I’m at my wits end. Im 22 and I started experiencing pelvic and intestinal pain December 2016. I ended up in the ER and they told me I had gastritis and just painful period cramps. Ever since then I have seen all sorts of doctors from gastroenterologists to natropaths to gynecologists. I was put on the pill, it made me incredibly. I was put on digestive enzymes and probiotics which didn’t do anything to alleviate my abdominal pain. I use to just experience pain during my period and ovulation but now it’s an everyday occurrence. I can’t sit for too long. I can’t move around for too long. It’s uncomfortable to pull my knees up to my stomach or do crunches or any sort of exercise anymore. I have had an ultrasound and the only abnormality was trapped fluid in the pelvis. All blood tests were normal. All still tests were normal. Had an upper endoscopy and colonoscopy done today with lots of biopsies, but nothing abnormal was found (yet, still waiting on biopsy results). On Tuesday of next week I am planning on seeing an endometriosis specialist. In the mean time though please help me out ladies. Am I going crazy? Is it normal that I’m experiencing this debilitating pain every day? My stomach always hurts and is always bloated no matter what I do. There is so much pressure in my pelvic region I can barely do anything. I hate the way my life has become. I spend most of my time at work (trying to breathe through the pain) and then laying in bed with my hot water bottle. I’ve lost any similance of a social life. I’m so tired of being in pain. I don’t even feel like fighting anymore. Every road is leading to a dead end.

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poppy75 profile image
poppy75

Nope, you don't sound crazy. You sound like someone incredibly fed up and frustrated with not getting anywhere. Sounds like you're on the right track now though. Hopefully biopsy results will arrive soon and the endometriosis consultant is helpful. If I was you I'd keep a daily diary of all your symptoms, take it with you. If there's another person you can take with you to the appointment who's aware of your daily pain do take them. It's worth pushing for an internal ct scan and MRI but the only way to properly diagnose endo that is not deep infiltrating is with a laparoscopy. Good luck and keep posting on here - you're not alone xx

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