Dont know what to do!!!: I have had a lot... - Endometriosis UK

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Dont know what to do!!!

Ginge30 profile image
2 Replies

I have had a lot of issues over the years and have posted here a few times as things have got worse over the last year or so n i have had a couple of emergency laps due to ruptured endometrionas where the blood has got into my abdomen!!

Anyways this month has been horrendous i am on the pill and have had a period halfway through my cycle and blood when had bm before period. Saturday morning i had horrendous sharp pain in my right side i had to have help to get out of work i could hardly walk!! i am 100% sure another cyst has ruptured and since then i have been spotting (im hopeful this means it hasnt gone into my stomach this time) i am in horrendous pain still! I saw doc yest n he couldnt have give any less of a shit if he tried i have co codamol to take the edge off and im meant to be fitted with the coil on friday and i dnt know if its a good idea whilst this is going on i dnt know what to do 😢😢 xx

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Ginge30
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Boodie profile image
Boodie

Aw I am so sorry for your suffering. Have you been diagnosed with endo? If not can you ask ypur GP for a referral to an specialist. I personally would not have the coil while things are going on inside. I dont have endo but was diagnosed with pelvic inflammatory disease in dec 2015 and it's been hell. I am currently on mini pill but it is giving me more pain and now I am bleeding for 9 days. I have been told to double my dosage but it is not helping. I am on pain killers 24 7 while trying to go to work . It is tough. It is horrible we have to suffer like this. Please try and get a referral and if your current GP is no use can you find another one willing to help. Painkillers just mask the problem . I am currently waiting for my gyne to contact me as I said I cannot go on like this. It is affecting my ability to function on a daily basis. Let me know how u go. Cyber hugs x

Ginge30 profile image
Ginge30 in reply to Boodie

I havent bee diagnosed and both my surgeries were performed by general surgeons they were more interested in checking my gallbladder etc on th second surgery i had my appendix out to rule that out and cleaned up the blood from the cyst and discharged me n just said if it happens again its definitely another cyst but that was it. I saw a gynea in Sept and he just told me to get coil fitted n that was it so now the docs wont refer me bck till ive tried it and im really not keen on it but i think it may mae them listen if it doesnt work!! It doest help all my bloods and scans come bck clear 🙈🙈

Its so dibilitating mentally ad physically especially trying to work full time being on my feet all night from 19 to 12 hrs im sorry ur suffering too i hope u get some help soon xx hugs x

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