Hi, I hope you don't mid me posting this. I'm 23 and have been having some trouble now for over a year and a half and I feel no closer to managing pain or knowing what is wrong.
I have been on the pill since I was 13 for horrendous periods that were causing me to miss school. Since then I have been on a series of pills that for most, the hormones were too much and I was an emotional wreck!
I came off my pill about 2 1/2 years ago as I was curious to see what my menstrual cycle was like as an adult. At that point I didn't have a period for over a year but had the most awful stabbing pains in my lower right side that reduced me to tears and all I could do was try my hardest to sleep through them.
I went to my doctor and he sent me home with buscopan, then later after pushing for asnwers, I had a internal ultrasound which was found to be clear and so were my AMH levels. After this there was no follow up and I let it slip to the back of my mind and tried my best to just get on with it.
I have now had the copper coil for over a year and once again this has not helped with my periods (giving me an idea of my cycle and if they are regular, which they are not) and they are still so painful and I am experiencing pain most days, most weeks.
I feel nauseous most days, I am very bloated (originally thought it was a food intolerance- its not)and some days I can't eat because of it. (I'm not pregnant).
I have now gone to a new gp (women's health specialist) who mentioned that she believes it is endometriosis and has put me on the list for a mirena coil and on the mini pill whilst i wait.
I have had quite a bad weekend and have been quite ill due to also having a heart condition, that just left me feeling awful and overwhelmed on Saturday. I had the worst nights sleep last night and woke up with intense nausea, cramps and stabbing pain. I am now just at a point where I don't know what to do.
Any advice you lovely ladies can give me would be great.
I am so sorry to read you are in so much pain.
My advice would be to ask your gynaecologist for an MRI, because ultra sound cannot diagnose endo if it is deep endo.
In my case I only found out because I had a cyst in my ovary and then they prescribed me an MRI, just to find I had deep endo in my bowels. This made all sense because of my symptoms related to bloating and pain.
Also, it is very important to take care of your diet. Try an anti inflammatory diet with omega 3 sources, dark green vegetables and try to reduce caffeine (it worsens the pain), processed food, gluten and dairy. Most of people (including doctors) have no idea of how diet impacts in endo symptoms.
Hi JuliaJambo! Thank you for replying.I eat a very clean, anti-inflammatory diet already due to my partner having crohn's. I just don't know how else to ask my GP to support me as when I had an appointment with a different gp last week, they just told me to read a book on eating healthy and gut health. It just frustrated me and made me feel even more helpless. I have another GP telephone consultation tomorrow. I don't know how much I can push for a gynaecology referral but I don't know what else my GP can do for me now other than a referral as I have had so many blood tests now and an ultrasound and still no closer to an answer.
good to know you have a good diet already.
I had the same situation with my GP not wanting to refer me.
In my case I had to emphasise to my GP that my symptoms were severe and affected my life. And I clearly asked for a referral.
You can ask your GP if you could have other scans before meeting the gynaecologist because it might take a while to have an appointment.