Need an outlet for how I'm feeling today.. - Endometriosis UK

Endometriosis UK

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Need an outlet for how I'm feeling today..

Caz-1 profile image
7 Replies

Just over 3 weeks ago I had a total hysterectomy with also the ovaries, fallopian tubes, huge cyst all endo.. I had frozen pelvis and endo alsonattsched to my bowel.. so it was a big long op. I'm sat here today, with the sun shining feeling horrific about myself. My hrt definitely hasn't kicked in yet (tibolone) so I'm waking often in the night which hot flushes (also in the day) so I'm constantly shattered, I feel hormonal, emotional, bloated swollen and if I haven't seen the sun for years! Pale swollen bloated mess. I'm not the type to feel like this often but I can't shake it at the moment. My partner is supportive and telling me I'm recovering and still thinks I'm gorgeous which is lovely and much needed to hear but I'm just not feeling it. It's warm and sunny and I want to feel and healthy and lost the bloating / swelling / excess weight from my middle. Sorry for my miserable rant on a gorgeous Saturday morning .. hope all feeling as good as you can today xx

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Caz-1
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7 Replies
Boodie profile image
Boodie

I'm sorry ypur feeling this way. Please can I ask how old you are and do you have kids or did u want them? I too am sitting in my house on the sofa feeling totally fed up. In pain and bleeding. I was diagnosed with pelvic inflammatory disease in dec 2015 and it has been crap for me since then. Currently living with chronic pelvic pain and dysfunctional bleeding. I have tried prostap but bad side effects combi pill but cannot take fur to migraines now on mini pill in more pain and bleeding. The very thing that was supposed to help me is causing me more pain and now bleeding. I am so sick of ing sick and crew up with this. When will it all end. I am nearly 40 and childless and my dream of having a baby is father away now than ever. Be kind to yourself. Your still healing and we will get there somehow x

Caz-1 profile image
Caz-1 in reply toBoodie

Hi boodie, thank you for replying.. :) yesterday ended up a little better . Say in the garden with a book afer a shower to perk myself up then had a much needed sleep.. I'm 45 and no children.. I had.mixed feelings when I was.married if to have them but my now ex husband didn't.. I'm now in a new relationship but it's too late for me now and he's had.the ship anyway! I feel now that im getting my head around things but it just isnt easy. Have you seen a specialist? What can they now recommend for you? Hope you're feeling a little better today? Xx

Boodie profile image
Boodie in reply toCaz-1

Hi there caz-1 , I was up at 6am in pain taking more painkillers. Doc advised to double dose on meds so I hope this stops the bleeding and pain. The sun is shining so I sat outside for a bit buts it's very hot. Currently resting on sofa with a hot bottle. It must be so hard to decide to have a hysterectomy for health reasons over having a baby. I think the state of my health as it is I could not look after a baby nor carry one due to pain constantly. I have a difficult decision to make if things dont settle down for me. x

lwp75 profile image
lwp75

Hi, just wanted to message to say give yourself time, it’s only been three weeks and it’s a major op. The external healing happens quite quickly so it’s easy to forget all the internal healing that is happening. I am one year past my op... total lap hysterectomy, removal of tubes and one ovary, and loads of endo cut out.

I felt I had healed quite quickly, but looking back it has taken we pretty much this whole year to feel me again, both physically and mentally.

Rest, enjoy the sun and remember all the internal work you have had is going to take s lot longer to fully heal that it seems from the outside xxx

Caz-1 profile image
Caz-1 in reply tolwp75

Hi and thank you for your message. Like I said in my reply to boodie I feel a little better. Not physically just emotionally. It is a huge thing we've been through and what ladies are going through.. not just the physical healing but emotionally too.. it's a part of life we will.look back on and hopefully be better for it. I keep reminding myself not even 4 weeks yet. The sun is definitely helping with my mental state! I'vebeen told by my surgeon at the time of surgery and the doctor just last week that I.will be off work for approx 10 weeks so they must have def done alot in there! Thanks again and I'm glad you're finally feeling back to hopefully a better self. Look after you. Xxx

lwp75 profile image
lwp75 in reply toCaz-1

10 weeks is a long time so as you say they must have done some serious work in there! I had three weeks off but with high sight should have taken another week or two, my doctor did recommend it but I was keen to get back to work, wish I had listened now!!! Enjoy the sun and look after yourself xxxxx

Caz-1 profile image
Caz-1

Great thank you x I will definitely have a look. Many thanks :) x

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