Pain up the bum. : I have been getting... - Endometriosis UK

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Pain up the bum.

Lauren-1998 profile image
20 Replies

I have been getting awful stabbing pains up my bottom, does anyone else experience this? 🤔

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Lauren-1998 profile image
Lauren-1998
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20 Replies
Catness profile image
Catness

Shooty bum pain! Yes! And I know another lady that does too and describes them exactly how I do - like a red hot poker that is so painful you can’t move for 20 or so seconds. My endo consultant feels it’s the endo in my bowel causing this :(

honeybug profile image
honeybug

Hi Lauren1998. and Catness

🌸🌺🌸🌺🌸🌺🌸🌺🌸

Does the pain run down the back of your leg or into your foot?

If yes you may be experiencing pain produced by Scatica... pinching of your sciatic nerve.

I believe someone in Neuro treats this.

😊🌸😊💕xxx

Lauren-1998 profile image
Lauren-1998 in reply tohoneybug

No it’s just in my bottom x

honeybug profile image
honeybug in reply toLauren-1998

It can start out with just your bum single cheek even. It originates in the lower back.

I’ve had 38 falls to date:

35 ft from tree age 10

2 10 ft out of windows as toddler

33 ground level through to adulthood

I slip &fall face down on sidewalk 2013

1 collapse = full body damage including spine and pelvis twisting 2000

The latter one created a short leg and worsened sciatica

The pain first started just in my bum and progressively affects both legs and feet

Wow does it hurt I took physiotherapy for 16 years I still do the main stretches to reduce pain along with heat /ice packs NSAIDS for pain

I hope this is helpful

God bless you and take care

😊🌸 🤗💕xxx

Catness profile image
Catness in reply tohoneybug

Hi Honeybug,

No it’s just the bum pain. I am all too familiar with sciatica unfortunately but this is a very different type of pain which others describe also below :( it’s very common when there is endo on the puch of Douglas or in the bowel itself xx

Sast profile image
Sast

Yes...just as described a red hot poker that catches you for 30 seconds so can’t breath or move. I have endo in pod so assumed it was that pain. My sister-in-law has described the same pain to me x

emmylouise1992 profile image
emmylouise1992

Yes omg I'm glad I'm not the only one I get shooting pains and are normally present when I'm either about to have my period or are on my period no idea what they are!!

Kdjhg08 profile image
Kdjhg08

Yes!!! I've suffered this since my teens. Will happen out the blue and makes me suck in a breath as its so painful. Literally lasts seconds then gone. Since having novasure I haven't experienced it but still get awful tummy pain. I have endo in pod xx

Mcfw profile image
Mcfw

Yes, mine started 14 years ago after the birth of my son, so I assumed it was due to traumatic birth. It started in my rectum and would shoot up inside me to my navel, I’d grip anything in reach to avoid collapsing or fainting. Undiagnosed, I had a laparoscopic hysterectomy last April (years of pain/complaining and misdiagnoses ) when the surgeon discovered severe endometriosis with RV nodule and thethering to bowel. The bottom pain seemed to go away for a few months but is back with vengeance now and accompanied by right side sharp pain from groin to waist and rib cage at night. In the day I suffer from severe pelvic bruising plus an occasional limp in that leg. I am having surgery with BSGE consultant at the end of this month for RV nodule and possible bowel resection.

Char411 profile image
Char411

Oh yes the red hot poker that stops me dead in my tracks, completely debilitating. My gastroenterologist said it’s common with RV Endo

Becka_2018 profile image
Becka_2018

Yes I had this it's awful. Mine was caused by Endo in the pod and since I've had it removed by lap I've had no pain since

Johanna1618 profile image
Johanna1618

Yes yes! Thank god I’m not the only one! I’ve had episode where it lasts for about 20 minutes and is honestly the worst pain I’ve experienced, it makes you fall to the floor. I had my lap done last year but don’t even think they checked my bowel. I have started experiencing the pain when i have a full bladder feels like a bowling ball pressure pushing down on my rectum. Anyone found remedies to reduce the pain? X

NoEndoInSight profile image
NoEndoInSight

Hello Lauren,

This sounds like it could be Endo on the bowel. Have you seen the Endometriosis UK fact sheet on this? It describes “knife up the bottom” pain as one of the symptoms.

endometriosis-uk.org/sites/...

x X x

Carolamb profile image
Carolamb

Yes i used to get it before i was diagnosed and bled from the rectum..its like a few seconds stabbing pain. I have endo in rectum and bowel. When i started zoladex the pain went

Hope that helps

I get this. It's nasty. I've had it before when walking along (usually with someone), and I usually have to stop and lean against something/try and stop my face contorting into weird expressions. Not an easy one to explain!

I also get a similar pain up my vagina. Does anyone else get that?

Rachie9 profile image
Rachie9 in reply to

I get the pain in the vagina too! I describe it as broken glass being scraped around up there/hot poker sensations.

The staff at the hospital are at a loss as to why I am feeling this pain. I had endo on POD/uterosacral ligaments and pain in bottom stopped after removal, but this vaginal pain is something else.

Any ideas why we get the pain here? Apparently everything looked normal when I had my op. They have done swabs to rule out infection...

Bob1993 profile image
Bob1993

I experience that too. Especially in the morning when my bladder is full and I need a poop. Such an intense pain but it’s normally over in a few secs x

Simo7 profile image
Simo7

Not sure if I've lost my earlier reply so sorry for repeating myself if I have. Yes, it feels like being stabbed in the rectum. The last surgery found endo on the outside of my bowel. A bowel surgeon was in surgery too incase I needed a resection, luckily it could be shaved off (sorry TMI) It worked for awhile but I still get the stabbing pain, it's one of my worst endo symptoms (not that I have a 'best'!) Definatly get a specialist gynaecologist to have a look with a bowel surgeon present incase.

Aaliyah16 profile image
Aaliyah16

I do get this especially during my periods!

princessk09 profile image
princessk09

Yeah I get the same when it’s my period though. It’s so painful I can’t sit down or move until it passes which could be up to 10 minutes 😫 I’m still waiting for a diagnosis but my doctor think I have endo that could be anywhere including my bowel and bladder xx

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