Endometriosis UK

LET'S MEET UP 😊

Hello Everyone,

I have suffered with Endometriosis my whole life and it's a year today since I had my last operation but I'm still in chronic pain everyday and on painkillers.

I would like to form an Endometriosis group where we all meet up face to face every month and have a coffee and a chat.

I would stand up for this as I can't sit down due to the pressure which gives more pain but that's fine I'm use to standing by now.

I want this to be an uplifting experience for everyone because as you all well know Endometriosis really gets you down!

Other people without Endometriosis, with due respect, don't really understand what we completely go through.

So let's all fight this B.... together.

So if anyone is interested please send me a message on here or to my personal email which is sarah.archangel@live.co.uk

Look forward to hearing from you all.

Sending Well Wishes

Many Thanks

Sarah 😊 xxx

59 Replies
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Where about are you from?

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I live in Batley West Yorkshire.

But I am willing to travel to where ever Wakefield, Leeds, Manchester Doncaster or to somewhere that's good for everyone.

Where abouts are you from?

Kind Regards

Sarah 😊

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Hey I live in Leeds and I would be interested in this! I wrote a similar post not too long ago about a group in Leeds as I know there isn’t one yet x

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Hi Abigail,

Thank you so much for your reply.

That's great you would be interested brilliant!

Just waiting to see if anymore people would like to join and then we can all discuss where we would like to meet and what's best for everyone.

Speak really soon.

Well Wishes

Sarah 😊 xxx

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Thanks Abigail 😆 xxx

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I’m from East Yorkshire I’d like to :)

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Hi Katie,

That's brilliant to hear! Great stuff! Where abouts from East Yorkshire you from?

Well Wishes

Sarah 😊 xxx

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Hi Sarah, what a small world! I live in Batley too x

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Hi Lizzy, Wow you live in Batley too amazing!

It sure is a small world!

Hope you can join the group.

Well Wishes

Sarah 😊 xxx

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I was so excited when you replyed to me I plucked up so much courage to write that post.

Hope you can join? 😊 x

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Hello, just to let you know there is a Facebook group northern endometriosis sisters support who do meet ups (they are meeting in hull today but have done leeds and Wakefield) not to stop you doing something similar but you may want to check it out, not managed to get to one myself yet but hope to in the future x

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Hi Philippa,

Thank you so much for this information I really appreciate it.

I wanted to do something that will help everyone and so interested in forming a group.

Hope you can come and join us

Kind Regards

Sarah

😊xxx

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Hi Sarah That's a great idea. I'm in Stoke but would be happy to meet in Manchester or Leeds etc.

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Hi Mrs Dann,

Thank you so much for your reply that's brilliant!

I'm going to leave it a little bit longer to see if anymore people would like to join and then ill be in touch with the details.

I'll speak to you really soon and thank you again.

Well Wishes

Sarah 😊 xxx

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Hi I love in Leicestershire let me know where and when and I’ll be there :) xx

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Hi Peyten,

Thank you so much for your reply that's brilliant!

I'm going to leave it a little bit longer to see if anymore people would like to join and then ill be in touch with the details.

I'll speak to you really soon and thank you again.

Well Wishes

Sarah 😊 xxx

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Hi Peyten,

There is a Leicester support group that runs once a month that you might be interested in attending: endometriosis-uk.org/leices...

Best Wishes,

M Mary

Volunteer Moderator

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Thankyou

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Thats exactly what ive been searching for. Just for some answers as drs cant give any. Im being treated for endo but they dont know for certain it is?? Now im getting more n more problems im terrified n i just want ppl who have suffered the same. So count me in!xx

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Hi Wabbit,

Thank you so much for your reply that's brilliant!

It's so lovely to hear that this group is what you have been searching for.

It will be great to talk to each other about our different experiences with Endometriosis and be able to just support each other.

Hope this group can help you with some of your questions although we can't diagnose as we're not medical professionals but we can have a really good chat about your symptoms and try and help you as a group.

I'm going to leave it a little bit longer to see if anymore people would like to join the group and then ill be in touch with the details.

I'll speak to you really soon and thank you again.

Well Wishes

Sarah 😊 xxx

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I'm from stoke but not passed my driving test yet👎x

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There's a meeting at m&s at wolstanton on 8th may at 6:30 in the community room if you can get there?

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Hi Rammstein,

Thank you for your reply.

Where's Wolstanton?

I would really like to form this group so we can help each other.

Kind Regards

Sarah 😊xxx

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Hi Shazlovesevo,

Thank you so much for your reply.

I was trying to think of ideas for you.

Do you think you would be able to maybe get the train once we decide on a place we will meet?

Do you have your driving test soon?

I'm going to leave it a little bit longer to see if anymore people are interested in joining the group.

I'll speak to you really soon and see if we can come up with some more ideas.

Well Wishes

Sarah 😊 xxx

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Hi Sarah, I have just emailed you about this. I live in chester.

Kinds regards

Hannah

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Hi Hannah,

Thank you so much for letting me know.

I will reply to you via your email.

Kind Regards

and

Well Wishes

Sarah 😊 xxx

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Shame to far for me but hope all goes well great idea hun xxxxxx

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Hi Loulou,

Thank you so much for your reply.

Where abouts do you live?

Well Wishes

Sarah 😊 xxx

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I live in Southampton hun; haven't found any support groups here either xxxxxxx

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Hi Loulou,

Oh no that's a shame your far away. Please keep in touch still on here or email me anytime to chat or for some support.

sarah.archangel@live.co.uk

Well Wishes

Sarah 😊 xxx

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Ty hun xxx xx

My email is

louisenvq@gmail.com xxxx

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Thanks for your email Louise 😊

I'll be in touch xxx

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I'm in derby.

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Hi Mrs Wesley,

Thank you for your reply.

Hope you can join us.

I'm just waiting a little bit longer to see if anymore people would like to join us and then see where people would like to meet up etc.

Speak to you really soon.

Well Wishes

Sarah 😊 xxx

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Hi, new to all this but thinking that meeting people with this condition is something I really need to do. I’m in Cheshire x

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Hi Chelsea,

Thank you so much for your reply.

I hope this group would really help you.

Hope you can join I'm just waiting a little bit longer to see if anymore people would like to join and then ill be in touch and we can sort out where is best for people to meet.

Speak to you really soon.

Well Wishes

Sarah 😊 xxx

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Hi Chelsea, I am New too and also from Cheshire. I am keen to meet others who are going through the same thing as at the moment don’t feel like anyone else understands. Hopefully see you at a meeting soon

Best wishes

Hannah

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Thank you for the reply Hannah, hope to see you there! This is quite out of my comfort zone to be honest but chatting can only be a good thing, take care x

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Don’t worry I feel completely the same way, it’s daunting speaking to strangers but I think it’s the only way I will get the emotional support I need. Speak soon 🙂

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Hi Chelsea it's so lovely you and Hannah are both from Cheshire.

It's brilliant!

Please don't worry about it.

I feel chatting will be a great uplifting experience for all of us and like you say it can only be a good thing! 😆

Speak soon.

Well Wishes

Sarah 😊 xxx

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Hi Hannah, This is lovely you and Chelsea are both from Cheshire! How brilliant!

It's fine you are both new to it.

New to Endometriosis or had it for years don't worry its for everyone.

I agree other people with respect don't fully understand what we go through.

But we all will understand each other at our group that's why it should be so uplifting! 😊x 😊x😊

Speak soon

Well Wishes

Sarah 😊 xxx

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Hey I would definitely be up for that. I live in Sheffield so I don’t mind travelling for the meeting. X

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Hi Becky,

Wonderful to hear you would like to meet up for a chat in our group.

Just gonna leave it a little bit longer to see if anyone else would like to join us and then we can sort out where and when etc.

Speak to you soon.

Well Wishes

Sarah 😊 xxx

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Leeds is very easy for me to get to 40 mins on train

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Oh that's great to know thank you Kate!

Gonna wait a little longer to see if anyone else would like to join and then we can sort out where and when

Well Wishes

Sarah 😊 xxx

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Hi sp123452017,

It's great that you want to form your own group to support others with endometriosis!

I don't know if you (and the others who have replied) are aware that Endometriosis UK do run a number of face-to-face support groups where people meet up on a regular basis. Sometimes they have guest speakers and some groups have Endo Nurses who attend.

You can find the locations of the support groups here:

endometriosis-uk.org/find-l...

If you are unable to find a group in your area, please do let us know. Whether you are able to run a group or would just like to attend one, we would love to know where you would like to see one. Fill out our Local Endometriosis UK Support Group enquiry form with your address and select on 'No group in my area' to let us know.

endometriosis-uk.org/are-yo...

We also offer Online Support Groups for women that have no support groups in their area.

endometriosis-uk.org/online...

Hope this helps you with more options for support if you need it!

RicEndoUK

Volunteer Moderator

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I'd love to be part off this. I'm in Wakefield so close to you too.

Can't wait to hear more about this and to meet people that actually understand.

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Hi Erin,

Wow Amazing your from Wakefield!

That's great you would like to be part of the group. Yes I agree it will be great to meet other people who actually understand.

Just leaving it a bit longer to see if anymore people would like to join and then we can all plan a place time etc.

Ill be in touch real soon.

Well Wishes

Sarah 😊 xxx

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Hello Erinmgm,

Just to let you know we will be training some new volunteers for a new support group in Wakefield in June. Will put more information out as and when it is up and running!

Best wishes,

Louise - Support Network Manager

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I haven't officially been diagnosed yet I'm waiting for my first lap. I've been on a 8-12 week waiting list for 3 weeks so not long hopefully. but I know its endometriosis. You know when you just know haha.

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Yep I know what you mean you know when you just know haha.

Are you having it done at Pinderfields with Dr Kramer? Xxx

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Hi, I'd definitely be up for this too. I live in Manchester, but happy to travel xx

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Hi Pooh bear,

Oh brilliant glad your up for this too that's great to hear! That's lovely your happy to travel too thank you.

Just waiting a little longer to see if anymore people would like to join and then we can all plan a place time etc.

Ill be in touch really soon.

Well Wishes

Sarah 😊 xxx

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Hello, I’d be interested in this! I’m from West Yorkshire but can pretty much anywhere😁xx

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Hi Ambs,

That's fantastic to hear you would be interested in this!

That's lovely you will travel too thank you.

Just waiting a little longer to see if anymore people would like to join and then we can all plan a place, time etc.

I'll be in touch really soon

Well Wishes

Sarah 😊 xxx

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Hi,

I'm glad you wrote this post as I have just joined this site after suffering with this for years, I was diagnosed a few months ago and have some days where I really struggle to do jobs because the pain gets so bad, noticed your Comment about sitting down makes it worse with the pressure and that's exactly what I'm having at the moment I haven't been able to sleep for a few nights as everytime I lie/sit down it's awful! I would be interested in joining the group thanks, Jo :) x

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Hi Jo,

Thank you for your kind reply about my post and its so brilliant to hear you would like to join the group! 😊

Sorry to hear you are in pain and haven't been able to sleep. It really can get you down and make everything difficult to do. What I do all the time is take painkillers, rub my whole belly and back where pain is with 10% Ibuprofen gel, use heat pads and my life saver little soft cushions which I tuck under each hip while I'm layed down ready to try sleep they help take some pressure off too. I also use a flat cushion under each foot to relieve more pressure. Some nights a flat cushion under knees too.

Just check with pharmacy before you use anything though hun incase you have any other medical conditions especially with mixing ibuprofen gel and painkillers you cannot use ibuprofen tablets at same time as ibuprofen gel the pharmacist told me.

Hope you manage to get some sleep tonight and some pain relief too.

Just waiting a little longer to see if anymore people would like to join the group and then we can all plan a place time etc.

Ill be in touch really soon.

Sending you Well Wishes for a peaceful nights sleep.

Sarah 😊 xxx

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Thank you for your reply, and tips will definitely come in handy :) wouldn't of thought to use the gel and I actually have that here so that is great had a bit of a better sleep and isn't too bad today still will have to push mysef into work, it's strange how some days you literally struggle to even move around with it, x

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Hi,

yes I agree with you and I think it's a nice idea to meet people who go through the same thing. Where do you live anyway? x

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