Painful sex 😪: Hi ladies hope you are all... - Endometriosis UK

Endometriosis UK

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Painful sex 😪

Sparklyjo profile image
6 Replies

Hi ladies hope you are all well? just need a moan really cos it's been playing on my mind. I've been diagnosed with endo and I also have functional neurological disorder which has symptoms very similar to MS, my husband and I have a very active sex life and even though it always hurts the pleasure outweighs the pain though after it I'm always in agony. Well the other day we were getting down to it and I had to stop him cos it hurt so dam much! I'm gutted , I am now really wary of doing it again , I know that sounds silly. My poor hubby felt awful bless him , hes amazing and always asks if I need him to stop.

Thanks for listening xxxx

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Sparklyjo profile image
Sparklyjo
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6 Replies
luthien profile image
luthien

Aww. I feel for you :(

I get what you mean and how you feel, we're very active too ;)

I don't have any great words of wisdom! Just try not to let that pain ruin the amazing sex you do have, try different positions etc, perhaps something in a certain way made it worse. We have a safe word, for when the pain gets too much or sudden pain so that there's trust :) it may take a while for both of you to get your confidence back, I'm sure you'll find it xx

JOSANDY40 profile image
JOSANDY40

Slower sex. Sex on your side. I would increase my painkillers in the late evening just in case.

Honestly it’s the worst when you want to and can’t but don’t let it put you off - I had similar problems but not to get too much into it I was thinking too much about how it might hurt and started tensing up which made it worse. My partner was very understanding however and sometimes it’s just not going to happen but you can enjoy other ways or sometimes it just needs a bit more time before going for it. Don’t know if this is a bit obvious but lube? I’d never used it before I always had this thought that it was for people with other issues but actually it helped a lot especially if I was a bit tense, although if you have any treatments don’t use anything that tingles or cools 🤦🏻‍♀️ might be worth seeing if it hurts at a particular time like the week leading up to a period or just after etc too or if you’re stressed, that sort of thing. Good luck!x

Starry profile image
Starry

Big hugs. I have huge problems in the bedroom department due to dyspareunia which surgery did little for sadly and activity is close to a standstill.

Intimacy doesn't always have to equal penetration though so perhaps you can rebuild trust with different ways.

Yes yes yes wb was recommended by my physio. And amielle vaginal trainers by my surgeon.

Sparklyjo profile image
Sparklyjo

Thank you so much for your replies ladies...he's been working nights for a four days so hopefully I've recovered lol xxx

Tonii profile image
Tonii

My doctor gave me some instillagel ( gel that’s used when inserting catheters) it has a little bit of local anaesthetic in it- might be worth a try? X

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