Pain in legs, anyone else? : Well it's... - Endometriosis UK

Endometriosis UK

69,900 members51,852 posts

Pain in legs, anyone else?

lizzyxx profile image
61 Replies

Well it's roughly 6 days before my period is due and the stabbing/shooting pain in my right leg has started. Does anyone else suffer with pain in the legs? x

Written by
lizzyxx profile image
lizzyxx
To view profiles and participate in discussions please or .
61 Replies
Natalie221 profile image
Natalie221

Ohhhh yes 😩😩 I get pain in both legs before and during my period, honestly sometimes it’s so hard to even get a shower because my legs feel really heavy like there just going to go from under me 😩 I can only describe it as a dull aching pain 😂😂 hope this helps x

lizzyxx profile image
lizzyxx in reply to Natalie221

Does it feel like really bad growing pains? I can only compare it to that as I remember the pain from years ago aha x

Natalie221 profile image
Natalie221 in reply to lizzyxx

😂😂 yeah it is am terrible at explaining pain haha x

lizzyxx profile image
lizzyxx in reply to Natalie221

I am too I can only imagine me trying to explain it when I'm at my appointment they'll think I'm nuts aha x

Natalie221 profile image
Natalie221 in reply to lizzyxx

Try putting a couple of pillows under your knees when your lying down sometimes eases the pain for me and am sure they’ve heard worse hahaha x

lizzyxx profile image
lizzyxx in reply to Natalie221

I do that for my stomach as it hurts more when I lie down, the joys aha x

Yep I certainly do, until now I’ve had it mostly a pulled muscle type of pain at the tops of my thighs and the sides however I recently started experiencing more shooting type pains. Just curious are you on the coil? I wondered if it was maybe related to that!x

lizzyxx profile image
lizzyxx in reply to

No I'm not on the coil as I have a bicornuate uterus so I can't have one, sometimes the pain can feel more like cramp in my legs but most of the time it's shooting pain x

in reply to lizzyxx

I got told at my last clinic appointment that they thought the endometriosis had somehow made my nerves hypersensitive, maybe something to do with that? I’ve seen a few posts about leg pain I’m sure you’ll get lots of replies about it. Funny how one thing can affect so many other bits of you!x

lizzyxx profile image
lizzyxx in reply to

I haven't been diagnosed with endometriosis I'm waiting for my first specialist appointment in 2 weeks after years of complaining to my gp, currently laid in bed after trying to sleep for nearly 3 hours but the pain isn't letting me. The joys hey x

Clarezee profile image
Clarezee in reply to

Hi jennabird... just a question as I'm under investigation for endometriosis due to leg and pelvic, groin and tummy pain😏 and have been offered the coil which i was told would help my pain... but my left thigh has been going numb on and off for the past 6-8 weeks accompanied by a weird sensation... I'm wondering if i should decide to have the coil could it effect my legs more?

in reply to Clarezee

Hello! I thought I replied to this but apparently not - oops!! I’m not sure that it would affect it more as such although I did feel like I had a lot more pain initially but it settled down after a couple of months. I still get pains my stomach is awful but on the whole I’d say it’s better. It’s one of those things though that each person could react differently, I always think try anything they say because if it works even a little then it’s some sort of relief. I was kind of sold the coil as a miracle and it’s certainly not that but it’s made periods a lot lighter and only lasts a day or two so that’s something positive!!

Netti451 profile image
Netti451

I have had extreme leg and pelvic pains for around 10 months now. On a good day it feels like bad growing pains. Deep hot burning dragging pain. Sometimes feels like its in my knee. Most of time in my groin and upper thighs. From ovulation right through to after my period. Not been diagnosed yet waiting for lap in next 2 weeks x

lizzyxx profile image
lizzyxx in reply to Netti451

Sounds like mine, do you also get a similar but more deeper pain around your bum? I get this before and during my period x

Mott14 profile image
Mott14

I have pain in my right thigh at the top for about 4 days before my period. The docter said its a symptom that goes with endometriosis. Get it when I'm ovulating too.

lizzyxx profile image
lizzyxx in reply to Mott14

Yeah I do too but I don't get it as bad when I'm ovulating it's worse just before and during my period

Mott14 profile image
Mott14

Yes its the same for me. Docter at the hospital gave me the mini pill to help all the symptoms etc but i havnt started yet. That was about 4 months ago!!! X

lizzyxx profile image
lizzyxx in reply to Mott14

I've been on and off the pill for years and it never worked for me, same with all the other tablets I tried x

daniemoss91 profile image
daniemoss91

That is very normal you can also have it with back pain and othet symptoms as long as you do not have any numbing in the legs then you shouldn't worry! Also during the pain try yoga it helps the muscles and can relax your body.see your gp if it get's any worse.

lizzyxx profile image
lizzyxx in reply to daniemoss91

I couldn't do yoga as even when I stretch in certain positions I get awful pulling pains

Louboo78 profile image
Louboo78

Absolutely! The pain in my groin on both sides was so bad i struggled to drive my car cause it hurt every time i lifted my foot up to use the clutch😬I have a 5cm cyst on my right ovary which I’m currently under the consultant for and wondered if that had anything to do with it?

I feel your pain.😢

lizzyxx profile image
lizzyxx in reply to Louboo78

I'm curious as to why it happens too, I've started keeping a pain diary for when I see the specialist and I'm actually shocked the amount of different types I've experienced just today alone. The joys of being due my period in 5 days aha x

Louboo78 profile image
Louboo78 in reply to lizzyxx

I get lots of different pains too! The pain used to be really severe in my back but now it’s all over the place, back, stomach, groin, legs. I feel like I need a full MOT most days😂xx

lizzyxx profile image
lizzyxx in reply to Louboo78

Same here especially the week before and during my period it's a nightmare! xx

Char411 profile image
Char411

I get shooting pains down my left leg from my groin into my knee and then during my period my thighs ache and throb deeply. My pelvic pain is mainly left sided and it can’t be coincidence that I get left leg pain too, I get a numbness on and off too, yet oddly nothing showed up in the MRI, I thought it might show some nerve damage. I’ve given up playing symptom or side effect with this bloody disease and try not be be too phased when something else pops up one day and never really goes away. I do hear a lot of us Endo ladies complain of leg pain, yet get fobbed off with the oh no that’s not related, gynae explanation. 🤦🏻‍♀️ X

lizzyxx profile image
lizzyxx in reply to Char411

Have you had lap to diagnose endo? x

Char411 profile image
Char411 in reply to lizzyxx

Having one in May, been diagnosed by symptoms only at the moment x

lizzyxx profile image
lizzyxx in reply to Char411

Feels like you're just constantly waiting around doesn't it x

Char411 profile image
Char411 in reply to lizzyxx

Always, one test after another with no clear answers. Fed up of being poked and prodded I’ve had 18 months of it now. Have you had a lap? X

lizzyxx profile image
lizzyxx in reply to Char411

Is that 18 months since you saw the endo specialist? No I'm having my first specialist appointment in 2 weeks after complaining to my gp for years I decided to see a different doctor who actually listened to me and referred me to an endo specialist x

Lizaclarke profile image
Lizaclarke in reply to Char411

Your right !! I get really bad pain shooting down my right leg most days and the gynaecologist told me exactly the same "oh that's not a symptom or anything to do with it" it's a joke , especially when you hear so many woman say they get this also who have endo !

lizzyxx profile image
lizzyxx in reply to Lizaclarke

Exactly, surely it can't be a coincidence? So many people with the same symptom

Char411 profile image
Char411

18 months since my gp suggested endometriosis, I waited 9 months to get my gynaecologist referral and whilst waiting for that I had scans, blood tests, internals, an endoscopy and a colonoscopy, various appointments with a gastroenterologist, it has been never ending, my Gp, gastroenterologist and gynaecologist have all said Endometriosis given my symptoms so now I am at the final stage of a lap. My gastroenterologist said to look at all the tests as a process of elimination and the more things we eliminate the more likely endometriosis becomes. He’s the best doctor I’ve seen throughout this whole process, given some have tried to fob me off, I wish he was my gynaecologist instead. Good luck with your process and feel free to ask me any questions. Here’s to potentially pain free days and answers ahead xx

lizzyxx profile image
lizzyxx in reply to Char411

I also have a gastroenterologist as I have blood in my bowel movements (tmi sorry aha) and they thought it could be ulcerative colitis but that was ruled out. Fingers crossed for us both xx

Char411 profile image
Char411 in reply to lizzyxx

I pass menstual blood through my rectum whilst opening my bowels during my period 😩😩 this is what led them to definitely think endometriosis after my colonoscopy was clear. they wanted to do another colonoscopy whilst on my period but I refused as I found it quite painful and I get a lot of rectal pain on my period. My gastroenterologist said he’d expect to find endo cells inside my bowel whilst on my period so wasn’t too alarmed by my symptoms anyway Xx

lizzyxx profile image
lizzyxx in reply to Char411

Oh I know how you feel they gave me two 6 months apart and they had to give me extra sedation as I couldn't cope it was excruciating. I get shooting pains and pressure in my bum when I try to go to the toilet on my period to the point it made me pass out, not nice is it xx

Char411 profile image
Char411 in reply to lizzyxx

Ahhhh I get that pressure feeling too. The shooting pains are the worst, stops you dead in your tracks. Ahh the joys of womanhood 😩 xx

lizzyxx profile image
lizzyxx in reply to Char411

Do you also get stabbing pains in your vagina? It doesn't happen often but when it does it takes my breathe away xx

Char411 profile image
Char411 in reply to lizzyxx

Omg yes, It feels like someone is stabbing a sword or poker up there , I don’t get it often either thank goodness, last time I had it I was in tesco’s and it came out of nowhere, I stopped dead and had to grip my boyfriends arm and wait for it to pass xx

lizzyxx profile image
lizzyxx in reply to Char411

Mine only lasts a few seconds but wow it hurts like hell doesn't it xx

Char411 profile image
Char411 in reply to lizzyxx

I think the cervix shooting pains and rectum shooting pains are probably the worst but easy to forget in the magnitude of symptoms as they only last a few seconds. It’s crazy we have identical symptoms. Nice to know we aren’t alone In this minefield xx

lizzyxx profile image
lizzyxx in reply to Char411

My bum aches too like a deep burn before and during my period, like my actual cheeks to the point I rub my bum and look like a complete nutter 😂 I'm certainly glad I found this website doesn't make me feel like I must exaggerate my symptoms as I have so many aha xx

feisty-girl profile image
feisty-girl in reply to Char411

It definitely is a process of elimination!!!I hope you can get some answers I am now going through the process again finding out have crohns ,endometriosis,fybromalgia,wasn't till all my lady bits taken out they figured next diagnosis.just got keep fighting till you get the right diagnosis .hugs x

Char411 profile image
Char411 in reply to feisty-girl

Ahhhh I’m sorry that’s a lot to deal with, I hope they are easing your pain and symptoms now they know what you have. They suspected celiac with me as my mum has it but have happily ruled it out now.

All the best for you Hun xx

feisty-girl profile image
feisty-girl in reply to Char411

Thankyou hun good to hear that you don't have celiac disease must be hard for your mum to live with.yes endometriosis has done a lot off damage not been able to eat for 7 years oh the joy of these diseases they only figuring out now I have evacuatory dysfunction,anismus,slow transit from endometriosis from the fact our pelvc floor compensates by making out pelvic floor contract the wrong way only taken them 20 +years figure it out .and a stoma bag which didn' t work.

So if you lady's want me answer anything feel free to ask I don' want you all feeling like they can' figure what' wrong hugs to all x

Char411 profile image
Char411 in reply to feisty-girl

Hat off to you, what an incredibly strong lady you are xx

feisty-girl profile image
feisty-girl in reply to Char411

No I just want try help others now so they don't get delayed on diagnosis xxx hugs to you

lizzyxx profile image
lizzyxx in reply to feisty-girl

That sounds like a nightmare hope they sort it out quickly for you x

Lauren-1998 profile image
Lauren-1998

I have pain in my groin and thighs as well x

lizzyxx profile image
lizzyxx in reply to Lauren-1998

Have you had a lap? x

Lauren-1998 profile image
Lauren-1998

Yeah I had one last year in July which removed a moderate amount of endo x

lizzyxx profile image
lizzyxx in reply to Lauren-1998

Did they explain why you get the pain in your legs? x

Kate345 profile image
Kate345 in reply to lizzyxx

There isn’t really an explanation for pain when it comes to endo.. endo causes pain and they don’t really know the big explanation to why others feel it in difffent places. I get horrendous leg pain and they just said yeah endo could hvd effected the nerves or it’s where you feel pain in your legs but the pain is actually elsewhere unfortunately one of those things but it makes sense in a way as hips, legs, stomach, pelvic etc are all connected with nerves and tissue.

I used to freak out with the leg pain and wasn’t sure if it was constipation or endo my nurse said it looked like both when they did the lap both causing issues

lizzyxx profile image
lizzyxx in reply to Kate345

I had my lap in june and was told my leg pain is caused by the endo on my ligaments

Kate345 profile image
Kate345 in reply to lizzyxx

I had non on my ligaments but leg pain was the first symptom I ever had. It’s scary because you can have a tiny bit of endo and be in agony and have loads and feel nothing the disease makes no sense

Lauren-1998 profile image
Lauren-1998

No not really but they did say that it could be due to damaged nerves because of the endo. X

lizzyxx profile image
lizzyxx in reply to Lauren-1998

Oh lovely aha x

Lauren-1998 profile image
Lauren-1998

Sorry I have just read your above posts and I too have the coil I wonder if this could be connected? 🤔

lizzyxx profile image
lizzyxx in reply to Lauren-1998

I don't have the coil hun x

Lauren-1998 profile image
Lauren-1998

Oh sorry x

Tuttyitg profile image
Tuttyitg

I suffer with leg aches every month due to endo, and feels exactly like growing pains when I was younger!

You may also like...

Back pain, anyone else?

Hi ladies, does anyone else get pain near the middle of your back? I get lower back pain but I've...

Has anyone got any tips for leg pain?

weeks my leg pain has gotten soo much worse. I suffer from the heaviness and dragging pains on and...

Anyone else have this type of pain?

throughout the month. Has anyone else experienced this with endo?

period pains, bloating, numb right leg and painful hip but no period anyone else get this?

me a break but ive got period symptom constant at the minuete I always have pain and symptos...

Does anyone else get pain under their ribs?

Hi I know everyone's pain is different, but does anyone else get bad pains under their ribs to the...