Endometriosis pain in stomach and upper legs

[moonlight2016]

Hello everybody I am wondering if anybody has pain in their stomach and any lumpy bumpy feeling around the stomach area? I have been having a lot of pain all over my body, specially my thighs and stomach area before and after my periods. I have been diagnosed with endometriosis since two years but the pain is just getting worse every time and I am starting to have consistent pain all over my body.

[Nickyt79]

Hi moonlight2016 i had the exact same symptoms and my legs used to feel so heavy and i could not touch my skin as it was so sensitive......this all led to me having a hysterectomy 8 weeks ago where they found i had some large fibroids too (even though i had scans they wasnt picked up before surgery).

I put up with the pain, heavy periods, mid cycle pain for years and it got progressively worse until at 38 i had full hysterectomy and im now on hrt. This is not an operation I advise you rush in to as I had so many complications after surgery and it is not actually the magic cure that they make it out to be.

Have you thought about having the merina coil fitted?

[Hidden in reply to Nickyt79]

Hi

What complications have you had since you had your hysterectomy? I am going for 2nd opinion for keyhole hysterectomy tomorrow?

[Nickyt79 in reply to Hidden]

I ended up with paralytic ileus which caused my bowel to twist and I also got sepsis.....they dont tell you that therd is a real chance of this complication due to the nature of the surgery. At 4 weeks post surgery i ended up back in hospital with a collection where my ovary had been removed so back on antibiotics i went. I am now 9 weeks post op and i have so much pain in my pelvis and having bladder issues too. As things are at the minute I really wish I had not had the surgery as I have more complications than what ive had relief....i know this is not everyones experience but just be aware things dont always work out for the best.

[Hidden in reply to Nickyt79]

They have exaimed about the risks to me. I am so sorry to hear what you are going through and hope you recover soon. My mind is all over the place. Well let's see what happens tomorrow. Take care xxx

[Rachie9]

Hi Moonlight2016,

My back and legs get sore and I also have restless legs...not sure if linked to endo?

I had my lap last Nov and the endo pain has gone in my pelvic area, however my bowel/stomach area is constantly in agony. It is interesting you say about lumpy as I too have found a lump a few times on the right side of my bowel or whatever ot is a bit lower down from my ribs. I can feel it prominentely for a couple of days then will vanish. I may feel another random one somewhere else on another occasion...

The body is a strange thing x

[Abi_97]

I have stomach pain a lot it comes in flares but my stomach is always tender to touch 😮 I am though being tested for gastro stuff 😮