I’ve not been very visible around here but I have found responses helpful in the past.
I’m currently signed off work due to pain caused by endometriosis. I was seen in the endo clinic in September and was advised they would look at my scans etc more closely as it would be a big surgery with potentially more damage caused. They also said they were referring me to the chronic pain management course and increased pain medication. By November I hadn’t heard anything back and so I rang them. Within a few days I had a response “carry on with current pain management medications” which currently are sitting at hefty doses of 4 kinds, not including paracetamol and the usual guff.
Fast forward to now and like I said signed off work because I’m so sore and feel like I’m now getting the same pains from my left scarred side in the right - it’s been 2 years since my laparoscopy. My GP is very good and is writing to them to ask to see me again especially as they haven’t referred me on to the pain management course. I just don’t know what else to do here because the consultant doesn’t take calls my gp is doing what she can but I’m still stuck. And the frustration, pains and this feeling of being stuck drags my mood down and causes considerable anxiety, which was all made ten times worse when my manager raised her voice and essentially spoke to me like a child when I called to tell her I couldn’t make it to work. I told her I was struggling and was met with a big sigh and now she is just ignoring me anyway. I work in health care myself and it wouldn’t be right to go in like this when I can’t concentrate and I’m tired out by just having a shower if I manage that!
I know all of you are going through the same thing and have been for years, I think like many I’m just fed up which I’ve said before. At the clinic they asked what my best outcome would be, I burst into tears and said just not to feel this every day. I didn’t think that was unreasonable.
Anyway, therapy session over for now - I’d be grateful for any suggestions or even just sharing your own experiences and how you’ve coped with them.