doubt creeping in now...: I had my gynae... - Endometriosis UK

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doubt creeping in now...

foursimplewords profile image
6 Replies

I had my gynae appt on Friday and he was filling out the form in front of me to request a lap, which made it all feel quite real.

I'm now convinced it's all in my head and they're not going to find anything. I don't have it half as bad as people on here. It's mainly IBS symptoms, always bloated and tired, small appetite (feeling sick and struggling to finish meals), plus extremely painful periods (mainly day 1 and 2, when it starts it will wake me up at night), plus random stabbing pains in my lower pelvis a few times a month. I also get pain during sex (it feels like being put on a skewer, lol!)

I don't want to wish endo upon myself but I'm worried they aren't going to find anything and I would have put myself through an op for nothing. They haven't been able to find any 'nodules' on examination, either.

Has anyone been in a similar situation to me, and they did find endo? I'm not in crippling pain all month round. Feel like a fraud.

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foursimplewords
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6 Replies
Telli686 profile image
Telli686

Hiya,

Your situation literally matches mine, except I went through all the pre op stuff got to two days before and backed out! I felt exactly the same as you, I have exactly the same symptoms, lots of IBS stuff, bad periods, some stabbing pains throughout the month but hardly anything as bad as some of the ladies on here. I felt like a fraud after reading lots of people's symptoms on here, and the doctors only sought to put doubt in my head too for over ten years. It's a tough decision because they could find lots or they could find nothing, I sat for days going over and over it in my head and ultimately cancelled it, I see now this may have been a big mistake. My advice, whilst you have time to, ask questions, get the reassurance you need, It's not in your head! Pain is pain! I felt very rushed because as soon as i'd been put on the waiting list, up came a slot. I had no time to ask everything I needed, and got so worried I cancelled it. Now i'm worried I won't be taken seriously if I pluck up the courage to ask for a lap again. Learn from my mistakes, don't make a rash decision either way! I'm not in crippling pain all month round, but when I do have a flare up, God it feels like i'm dying! People told me to have the surgery if I couldn't cope with the pain. To say I can cope with it, when I have it, is insane, of course I can't . But it's easy for people to ask if you are coping on the days you have a flare up. And it's even easier for the doubt to creep in on the days you are feeling fine! I know what you're going through! I wish you all the best and I hope everything works out for you. Go with your gut, a woman's intuition should never be ignored, I wish i'd trusted mine xxx

foursimplewords profile image
foursimplewords in reply toTelli686

thank you, sorry to hear you're going through a tough time xx

I'm ok sat here now just with a mild dull ache but as soon as my period turns up I'm in tears :(

Telli686 profile image
Telli686 in reply tofoursimplewords

Aw and the same to you. Oh dear, see that's the same for me, its always just an ache, until i'm due on, or my period starts. It made me doubt myself too. I should have had my op today. Now I don't know what will happen xxx

foursimplewords profile image
foursimplewords in reply toTelli686

you can always have the op later hun x

Telli686 profile image
Telli686 in reply tofoursimplewords

I truly hope so. Let's hope they don't say no xxx

foursimplewords profile image
foursimplewords in reply toTelli686

i'm sure they will understand people having a wobble about a surgery, it's not to be taken lightly

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