Trying hard to be positive but feeling so... - Endometriosis UK

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Trying hard to be positive but feeling so negative

Lyn84 profile image
8 Replies

I am 33 and was diagnosed a month ago with endometriosis after a lap surgery and suffering for two yrs after coming off the pill to get a diagnosis it was a relief to finally get a diagnosis but as i was expecting to be told i had blocked fallopian tubes after a previous pelvic infection i was not able to have the dye test and am still hoping to have answer as to if my tubes are blocked from that or the endometriosis i have researched diet and have been following everything diet wise to try to help i have been trying to get pregnant for over a yr and am finding it all taking a great emotional toll on me and my relationship im told and told by so many ppl how they know someone with endometriosis who has 2/3 children but as i know this is not the case for everyone i find it hard to find comfort from this i also do not qualify for ivf as my partner already has a child so i do not have the hope of this as a option i cant imagine never having a child of my own and am loosing hope

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Lyn84 profile image
Lyn84
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8 Replies
discobec profile image
discobec

Hi Lyn84, wish I was able to offer a few words of advice, but didn't want to just read and run either. I was diagnosed with Stage 4 endo aged 33 too. I'm 36 now and have been trying to conceive for 4 years. I've had 3 surgeries to date and have just had a failed cycle of IVF.

Despite all this, I'm still positive that we'll get our family one day and we'll appreciate it all the more after everything we've been through.

Here if you need a chat. X

Lyn84 profile image
Lyn84 in reply to discobec

Thank you for the reply knowing what you have been through and that despite it all your still positive gives me encouragement to stay positive x

discobec profile image
discobec in reply to Lyn84

It's a long and difficult journey and believe me, I've had my moments, but miracles happen every day and there's always hope! Xx

Lyn84 profile image
Lyn84

Not having the best day today was having a nice day spending time with my boyfriend and little boy and it has now been ruined by my pain taking over i feel like crying as my boyfriend is annoyed with me that im ruining the day 😢 has anyone elses partner lost patience with them being in pain?

Hi Lyn84.

I am sorry to hear of your struggles and it’s often takes a long time to get a diagnosis of endometriosis. It took me 5 years and 10 months of ttc to get diagnosed ; our only issue is I have endometriosis. Previously it was “unexplained infertility “ and people often just told me to “ relax and it’ll happen!!” 🤬🤬🤬🤦🏼‍♀️ and all the relaxing in the world would’ve never have removed my endometriosis from pod ( especially the implants on the back of my uterus). I have just had my second laparoscopy after my endometriosis returned after I had a early miscarriage. Some endometriosis is still on my bowel so my fertility specialist has referred me to an endometriosis specialist he knows.

Yes in answer to your question it can make having a baby more difficult for some endometriosis sufferers. The good news is the endometriosis should ease once you are pregnant 😊

One of the ladies on this site and fertility had blocked tubes and endometriosis and she used serreptapse ( if that’s spelt right) and managed to unblock her tubes and fall pregnant ; there is hope. ❤️

I think your need to show your boyfriend information on endometriosis so he understands the condition fully; it is very debilitating. My hubby looks after me when in my period and does the housework and sorts tea when I’m my period ;I can’t manage to do anything. Unfortunately it is a chronic condition which isn’t curable; the gynaecologist said “ the problem is endometriosis can and does grow back”. I seem to be particularly prone to it recurring.

Have you considered IVF aboard as it’s much cheaper than the UK. xoxo

Lyn84 profile image
Lyn84

Hi thank you for my response i will have to try and read up about the serreptapse not heard of it i have seen that ivf is cheaper abroad it has crossed my mind, my partner just said hes not annoyed at me but the situation but that doesnt make me feel any less crap when his reaction is the way it is, i am sorry to hear of your struggle also 🙁

Lyn84 profile image
Lyn84

Just wanted to say thank you for the tip about the serrapeptase i have researched it all morning and am going to give it a go 😆

Netti451 profile image
Netti451

Hi Lyn

I am so sorry to hear of how you are feeling. I am 33 and have been trying for a baby almost 3 years, had one miscarraige at 7 weeks after trying for 6 months. 12 months ago i started getting horrendous leg and pelvic pain together with uti symptoms (confirmed no actual infection) my GP suggested endo,so i researched it and kept a pain diary as advised by endo uk. When i next saw my consultant and showed her she recommended a lap. That was in october. Still waiting and in lots of pain. The pain is so bad around ovulation now that i miss my "window" for trying as i am doubled over. As i tell my hubby there is "zero chance of a baby dance". This has given me a psycological break from peeing on sticks for ovulation and pregnancy every month. (Not much question as to when i ovulate these days anyway given the agony) lol. Anyway.....my point is...i have found it hard to constantly try. I have tried diets to improve hormones for fertility and i have tried a coctail of supplements. None of it worked. Its too hard to keep trying every single month like that, i found i needed a break every now and then. At one point i took a 3 month break and it did me a world of good. As for your partner. He already has a child of his own so cannot begin to appreciate that need... i didn't even know that was a rule for IVF i thought it was if the woman already had a child?

Big hugs x

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