First time posting...: Ok, so a bit about... - Endometriosis UK

Endometriosis UK

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First time posting...

Clairey007 profile image
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Ok, so a bit about me...I was diagnosed with Endo almost 2 years ago now. It was kinda lucky. I'd had the usual chronic pain in the first couple of days of my period for about 1.5-2yrs and just assumed it was a natural thing with my periods (they'd previously been fine, bit of discomfort but not what I'd describe as pain), and a lack of exercise. It eventually got bad enough that I went to see my GP, who was really good and sent me for blood tests and an ultrasound (US) - though endo wasn't mentioned as a possible diagnosis at that point, I'd thought fibroids or something like that. The US found cysts - 2, 3.5cms each, on my right ovary (which made sense as that's the side that had the worst pain). The radiographer said that because it was 2, she'd recommend my GP refer me to gynae consultant, which duly happened. The consultant listened and said we'd go straight for a laparoscopic cystectomy and recommended a coil as well to help manage pain/bleeding, instead of just waiting to see what happened (he could tell that I just wanted it sorted). So, end of April 2016 came around and I was in hospital waiting for my op...then I was in recovery - being told you have extensive endometriosis when you're: (1) expecting to only be told the op was a success; and (2) drugged up to the eyeballs on anaesthetic, really isn't great!! I'd rather they'd have waiting until I was on the ward and completely compus mentis, but hey ho, that's the way it goes!! I think it's safe to say, I had no idea what it was, and didn't really have it explained to me at the time, and it took me a while to start researching it for myself. Point to note, my surgeon was lovely, but I'm pretty sure he wasn't an endo specialist.

Fast forward to now, March 2018...I was diagnosed with asthma at the beginning of December 2017, after never having suffered with it before. This was a shock to say the least! It's especially difficult for me because it appears to be seasonal (at the moment...I know, I didn't think it could be seasonal either), so is triggered by extremely cold temperatures - who knows what'll happen when it gets really warm?!?! I've managed to get myself back to being quite fit and really enjoy running, so not being able to run during the cold spells we've had recently really hasn't been helpful! In looking around, I've found that there is potentially a link between endo and asthma, but there's a lack of information about how/why it may happen, though I did read one article that suggested it could be partially due to a lower immune system, but again, no definitive evidence to support that.

Basically, I'm woefully ill-informed and unsure about everything! I know pain levels aren't necessarily an indication of severity, but with a high pain threshold and the coil, it's difficult to know what's happening! That said, I do think I'm going to be visiting my GP in the near future and asking for a referral to a specialist centre as I've been experiencing more pain/discomfort in the last month or so than I have for a long time.

Apologies for the long, rambling post everyone!!

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Clairey007
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