This is my first post on here as I just joined today. For everyone who has posted their stories and advice you are all truly inspirational. I cannot tell you what weight has been lifted from my shoulders knowing I am not the only one out there going through such a rough time.
I have been on this horrible road for 5 years now. 2 years ago I was the luckiest girl in the world to meet my other half and we are getting married next year. I know how lucky I am to have somebody who accepts and tries to understand all of this but it must be so hard looking in.
I have had 2 laparoscopys and 1 laparotomy. Have a Mirena fitted and have been on a 6 month course of Decapeptyl injections (hell). Unfortunately nothing I do or try is getting this sorted... I am slowly loosing the will to fight.
All GP's and consultants do is think I am over exaggerating because every treatment is not touching me. I have been referred to the pain clinic as I am now being told that I need to learn to live with it and not end it.
I am looking forward to the next step in my life with marriage etc but I am also panicking that I will not be able to give my other half everything he deserves because he really is the best guy in the world and as much as he says I don't.. I can't help feel like a burden to him.
I'm wondering if anyone has any tips/advice on day to day life, other pain management, relationships, or if there is some other treatment that hasn't been offered to me that I could ask for.
Thanks everyone - sorry it's a long one - felt good to get it all out though!