Hi all, I’m new to the forum! So I’ve got a few questions. I’ve attached a list of symptoms I’ve experienced for 13 years now- I’m 25 and have been going to the GP since I was 12 years old mainly with the pain in the kidney area which used to be so bad I’d lay and cry for hours. My symptoms eased 3 years ago when I fell pregnant with my son, and have remained dormant since as I’ve had another baby straight after. I also ruled it out as I fell pregnant within 6 months of trying with my first and my first cycle with my second. He’s now 3 months old and the symptoms have came back worse than ever. The kidney pains back however the Gp treated me last week for a kidney infection, the antibiotics haven’t worked and the specimen she sent actually came back negative. This has happened dozens of times over the years where I have had signs of a kidney or urine infection but nothing has showed in any samples. I’ve also had a ultrasound of my kidneys which again didn’t show anything. It’s taken me 13 years to pluck up the courage to mention the word endometriosis at my GP appointment, however today I did and left gutted as she could not have listened any less to what I had to say and sent me off with more antibiotics maintaining it is a kidney infection. Was told it “is not Endo as my symptoms would have stopped last week when my period ended” even though I told her I am still bleeding on and off now.
Has anyone else had similar symptoms/experiences? I feel so disheartened and feel like I’ve gone back to my teens when the symptoms ruled my life. I have 2 children under 2 so really don’t want it to drag on and take over my life so I have no energy for them, but I don’t feel like I’m going to get anywhere with investigations as no one will listen.
P.s. could only attach one side of the list- the other side says pain when urinating, blood in urine, feeling of needing to urinate but unable to, sudden onset of needing to urinate, lower back pain & knee/leg pain.