I have Endo which was diagnosed with a laparoscopy back in May 2017. Since then my pain and symptoms have got so much worse than they’ve ever been.
Today I had an appointment with a gynaecologist at my local hospital to discuss my symptoms. Basically, I have to pee 30+ times during the day and at least 4+ times during the night, I’ve had 6 diagnosed UTIs and a few with the symptoms but no infection since last May (no UTIs prior to laparoscopy), blood in my urine during period, pain when I don’t go to pee immediately and more intense/more frequent Endo pains.
Today the gynaecologist told me that he believes there’s no connection to my Endo and the Endo can’t possibly have returned because they only find minimal Endo back in May.
He believes that I have just lost all control of my bladder at the age of 23 and I’ll have to go on strong medication to help me get control of my bladder again. He’s also said that I’m doing everything correctly (avoiding caffeine, alcohol, acidic and sugary things etc.) but now I should just stick to water and have nothing else and become tea total completely! He also told me that I’m drinking the right amount each day but I should reduce it significantly to stop the urgency to urinate even though doctors have told me to drink more to stop UTIs. His explanation for the sudden start of continuous UTIs is that I’m now unhygienic and have rougher sex. I’ve been in a long-term relationship with the same man for years and we haven’t changed how we have sex and I’m a hygienic person (but also not too hygienic), nothing has changed so that doesn’t explain why I get UTIs now.
I told him that I think the Endo has returned and its affecting my bladder and I’d like a cystoscopy but he doesn’t think it’s my Endo at all and that I’ve just lost control of my bladder and I have rougher sex now 😫.
I told him that I don’t agree with his diagnosis and I’d like a second opinion so I’m seeing another gynaecologist on the 23rd Jan.
What should I do? Can you demand to have a cystoscopy? Can I demand that they do more tests? Has anybody had anything like this before?