Endometriosis UK
34,775 members31,005 posts

Feeling unusually better on the mini pill?

Hi all, I’m just looking for some advice regarding the mini pill (in particular Norgeston).

Back in October last year, I was hospitalised twice with severe symptoms, including terrible diarrhoea, complete loss of appetite, nausea, vomiting, heartburn, fever, burning/gnawing pains around my appendix and in my right hip/lower back, pains in anus etc.. I lost around 9kg in total and had never felt so poorly. I’d had symptoms leading up to this for quite some time, but it went downhill rapidly.

To cut a long story short, I eventually improved but I was still very ill and struggling to get a diagnosis. I had so many tests (colonoscopy, endoscopy, food allergy tests etc.) and everything came back clear. I eventually started to notice a pattern (it was getting worse monthly around my period) and fast-forward a couple of months later and I’m now on the list for a diagnostic laparoscopy for endometriosis with a specialist.

I’m 95% certain I have endometriosis and so is my consultant, but the one thing that’s baffled me is how much better I feel on the mini pill. I’ve been on it now since December and within 2 weeks, I felt so much better. I still get fatigue, mild gripping sensations in my right hip/side/back, occasional pains in the anus and regular nausea/smaller appetite, but in comparison to how I was, I’m in a brilliant place. I know that feeling better on the pill is a good indicator for endo, but I’m just so surprised by HOW much better I am on it... to the point of where it occasionally makes me question if I even have endo. Is it possible for it to improve things THIS much?

I guess I know soon when I have the laparoscopy (no date set yet) but I’m just interested to hear from you guys in the meantime.

Thanks

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