Endometriosis UK

Feeling unusually better on the mini pill?

Hi all, I’m just looking for some advice regarding the mini pill (in particular Norgeston).

Back in October last year, I was hospitalised twice with severe symptoms, including terrible diarrhoea, complete loss of appetite, nausea, vomiting, heartburn, fever, burning/gnawing pains around my appendix and in my right hip/lower back, pains in anus etc.. I lost around 9kg in total and had never felt so poorly. I’d had symptoms leading up to this for quite some time, but it went downhill rapidly.

To cut a long story short, I eventually improved but I was still very ill and struggling to get a diagnosis. I had so many tests (colonoscopy, endoscopy, food allergy tests etc.) and everything came back clear. I eventually started to notice a pattern (it was getting worse monthly around my period) and fast-forward a couple of months later and I’m now on the list for a diagnostic laparoscopy for endometriosis with a specialist.

I’m 95% certain I have endometriosis and so is my consultant, but the one thing that’s baffled me is how much better I feel on the mini pill. I’ve been on it now since December and within 2 weeks, I felt so much better. I still get fatigue, mild gripping sensations in my right hip/side/back, occasional pains in the anus and regular nausea/smaller appetite, but in comparison to how I was, I’m in a brilliant place. I know that feeling better on the pill is a good indicator for endo, but I’m just so surprised by HOW much better I am on it... to the point of where it occasionally makes me question if I even have endo. Is it possible for it to improve things THIS much?

I guess I know soon when I have the laparoscopy (no date set yet) but I’m just interested to hear from you guys in the meantime.



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