Bladder restriction and stents

[Johans11]

I recently (nearly a month post op) had endo removed from my bladder. It was full thickness so they had to cut a piece of my bladder away. I still have stents from my kidneys to my bladder and a catheter. I will find out on Monday if I can have them removed after the dye scan.

I was wondering if anyone else had extreme pain with stents after this kind of surgery. It’s so bad I can’t sleep without strong pain killers and any activity, even gentle walk for 20/30 minutes makes my back so painful. I also have a lot of blood in my urine still and frequent blood clots and wonder if this is normal a whole month after surgery. I’m scared they won’t take them out on Monday and I just don’t know how I will cope if they tell me I have to have the stents and catheter for longer.

I’m also very anxious of how they will remove the stents which will be done while I’m awake via cystoscope. I’ve had one before to look at the inside of my bladder and it was very u comfortable. Right now my pee hole is so sore from having the catheter for so long I’m really worried about this 😣 any reassurance you ladies could offer would really be great.

Lots of love

Jo

Xxx

[harrietkatie]

Oh I really can’t help you because I haven’t been through such extensive surgery, just normal lap and removal of endo around gynae organs.

But I didn’t want to read and run because I really felt for you reading your post!

I really hope everything goes well for you on Monday. I had a catheter in for nearly a week after my lap and that was bad enough, I just couldn’t recover or even just get comfortable until it was out so I can sympathise with you there. Xx

[Johans11 in reply to harrietkatie]

Ah thanks so much for the kind reply! Yes Catheters are not comfortable at all huh. I’m sure it will all go well on Monday and after they remove all the tubes 😣I’ll start to feel myself again 💪🏼

I’m just a total wuss when it comes to anything going in my urethra (crosses legs tightly) lol😆.

Was it painful when they removed your catheter? I hope all is well with you now and you are fully recovered and endo free ❤️

Xxx

[harrietkatie in reply to Johans11]

I am the exact same. I remember when I did my nursing training and i was like, I hope to god I never ever have one of these!!

So on the Tuesday evening, the day of my lap, when it was like 9-10pm and I still couldn’t pee... they obviously mentioned the ‘c’ word and I was literally crying haha!! I was so so worried. Literally worse than going in for surgery, I was such a baby!!

But when they put it in it wasn’t half as bad as I thought it was going to be!

I had to have it taken out the next morning and re put in and that wasn’t nice because I guess it was just aggravated from having one put in the night before.

When they took it out though it doesn’t hurt at all! It didn’t for me anyway. It felt so so weird though. And my first wee I did by myself was so weird too!! Xx

[harrietkatie]

How did you get on? Xx

[Johans11 in reply to harrietkatie]

Hey lovely, thanks for asking. I have so much respect for the nursing staff they are absolute angels and have looked after me so well through this whole process. They are so empathetic and comforting when you are scared. I had to have a spinal injection before my surgery and was freaking out and the nurse held my hand and strokes my head, telling me how brave I was 😢 so nice of her.

I know I was the same I was more worried about catheters and stents than the actual surgery. It’s the fear of the unknown I think and plus our pee holes are tiny 😂

I was at the hospital most of the day. The removing of the catheter was actually fine even though I was dreading it. But my first pee without it, whilst still having my stents in was bad, I actually collapsed on the bathroom floor it was so painful but after that first pee everything got easier.

All my scans are clear and my bladder has healed. Having the camera in to take the stents out was uncomfortable but bearable and quick and now I am give free and peeing ok and soooooo relived it is all over

You know when you are worried about something and you can’t relax, now I can relax 😊. I hope all is well with you and we have both seen the last of the catheters 💪🏼😊

Xxx

[Nataliex in reply to Johans11]

Hi, I just came across your post searching for bladder related posts. I'm due to have a cystoscopy next week as my MRI showed the endo has grown through the full thickness of my bladder wall just like yours had. It's through about 1/3 of my bladder and they will need to remove all of that either by robot keyhole or open surgery but need the cystoscopy to see if the tubes from my kidneys are also effected.

Hoping you can tell me how your bladder is after surgery. I'm worried that they're removing so much of my bladder I'm going to need to pee every 5 minutes for the rest of my life! Also worried about the after effects of both procedures.

Any advice you can give would be much appreciated!

Thanks N