Endometriosis Surgery/Pain

[Pugmum25]

Hi,

I’m waiting for a laparoscopy and will hopefully be having surgery next month. My womb and bladder have fused together so I’m going to have surgery with gynae and urology. I’m just wondering if anyone has had this surgery.

Whilst I’m waiting I get horrendous pelvic pain every month, often throw up and have big blood clots. Endo also affects my bladder and I often rush to the toilet. Im feeling really fed up.

TIA

[Endosufferer1]

Try taking noni juice

[Leanne102]

Hiya,

I had my op early March and while my bladder and womb weren't fused my ovaries were fused to the back of my uterus and needed to be detached, mine also affected my bowel and pelvis amongst many other things.

I can't say how yours will affect you specifically, but any detachment and separation is far bigger than I think we assume it will be. It has taken me all this time to slowly get back to normal activity, and even now I still get a bit of trouble from where major removals were done.

Please take care of yourself!! Rest as much as you can and try not to force yourself to get back to regular activity quicker than you can manage. I really struggled the first few weeks, mostly emotionally and mentally if I'm honest. I didn't get discharged with as much information as I really needed and found that I was incredibly detached from my body and what had happened. Make sure you lean on people when you need it. I would recommend getting in touch with a women's health nurse if you have one at your local GP, I found mine to be really understanding and much more helpful than anyone else throughout my whole procedure and time in hospital.

If you have any questions about surgery prep, the procedure or just anything feel free to give me a message!

Leanne x

[Pugmum25 in reply to Leanne102]

Thanks for your message Leanne. It’s hard isn’t it because during the laparoscopy they could find endo anywhere and have to remove it couldn’t they. Was it a day surgery or did you stay in overnight? Will I be allowed to drive after it? When I google laparoscopy it says recovery could be a couple of weeks but you’re definitely right, surely this is big surgery xx

[Leanne102 in reply to Pugmum25]

Hi!

Yeah that's the thing! I had surgery 2 years after the MRI and no checks in between so it really was totally different to what was expected. I had to stay in with mine because of how extensive it was, and the hospital I was seen at. There are a couple here that take you as day surgery, but I'm not sure how common that it. I was on the ward with about 4 others who had varying levels of surgeries, one lady next to me had a hysterectomy and was let out the next morning, she was moving around like she'd not had anything done! I had mine on the Friday afternoon and was home Sunday evening. I was recommended not to drive for around 4-6 weeks but out of necessity I think I drove to the pharmacy and shop around 3-4 weeks. It took a toll energy wise, but I think as long as you can manage the steering and gear changing you will be ok to take it carefully and where necessary. I think a good judgement is whether you can comfortably press down on the pedals too, it's surprising how most movement affects that area really.

It is a very big surgery and I think because it's not visible externally and there's not really a post op management plan for recovery it might not be seen as such. We're just left with tiny scars and sort of left to it.

[Coral07]

Hi I’m sorry your having such a shitty time, I’ve had endo for 14 years now and apart from the obvious of pain meds one thing I fell on afew years back was cooling patches from a website called “ BeYou” they are amazing I have never gone back to a hot warren bottle since!! They won’t complete take away your pain unfortunately as endo is a bitch but they massively help and can be worn for 12 hours at a time. I have stage 3 endo wide spread too and they do the trick for me🫶🏼🤍