Newbie in need of help!

[happygirl123]

Hi everyone! I am new to this community and so happy to have found a place to help others and share stories. I'll keep this short! I am 22 years old, and have been suffering with various symptoms for a while. However, I recently decided to do something about it.

My gnae suspects I have endometriosis on my uterosacral ligaments, and pouch of douglas. I had never heard of these names before this! I had my MRI (with contrast dye) this morning. I will receive the results next week. My symptoms briefly are deep pain during intercourse (sometimes felt in my bottom), especially with certain angles, painful periods (including a few days before period), and symptoms which have been previously diagnosed as IBS. I'm coming to think IBS is a common diagnosis for women with endo. My bowel movements are also affected during my periods. Recently, I've had ovarian pain, especially when filling or emptying my bladder, and lots of gas and bloatedness.

If I do indeed have endo on US ligaments and POD, is this considered deep endometriosis? What type of surgery is usually performed in this case (excision?) and generally, if there are no complications, how long is the hospital stay, if any?

I am so nervous about this all and have so many questions. Sorry for blabbing on, but I look forward to hearing from you guys!

Keep strong xo

[Hormone-hell]

Hey happygirl123!

I am sorry to hear about the synptoms you are experiencing.

Endometriosis in your Pouch of douglas and uterosacral ligaments can certainly cause the symptoms you are describing.

I am glad to hear your doctor has sorted an MRI, this may or may not show Endometriosis, many people find it does not show the extent of their disease. If your results do not show anything do not allow the doctor to tell you that there is nothing wrong.

Has your doctor given you any medication whilst you are under investigation?

Some people find Mefenamic acid helpful or a change in diet to help manage their symptoms.

your doctor should arrnage a diagnostic laproscopy with an endometriosis specialist, the surgeon should then remove any endo they find with excision surgery or ablation if the area is too delicate to use excision. However excision should be used whenever possible as ablation can spread the disease further.

Hopefully other members can also provide further information for you too : )

xx

[happygirl123 in reply to Hormone-hell]

Hey R120!

Thank you so much for your response! I am doing lots of research now and finding names of parts of my anatomy I never even knew existed! She didn't prescribe me anything as of yet and said to see what the MRI shows up with. I hope if something is there it will show At least if I have to go for a laparoscopy, I'll at least have a small idea of what they will find xx

[Hormone-hell in reply to happygirl123]

No problem : )

If your pain gets too much, sometimes Feminax was helpful for me short term.

I also found magnesium spray helpful too if I had flares, sometimes your muscles can tense up from the pain and make everything worse and it just helps relax that a little bit.

Yes that's exactly how I felt, I tried a couple of different birth control pills that didn't help me much and I couldn't agree to any of the further treatments they were offering me until I knew exactly what was wrong with me!

I hope you find out soon!

Just make sure they don't fob you off with loads of painkillers without finding out the root cause of the pain xx