Really need and would appreciate some advice about the treatment and information I received from the the surgeon after my laparoscopy
I had my first diagnostic lap including excision of any endo if found on the 1st of April, the surgeon that did the lap led me to believe she was an endo specialist after I came out of surgery I was told by the nurse my bowel was stuck to something (don't know what) and was cut away, I was put on the recovery ward and the surgeon came in and said I had deep endo nodules to the left of my pouch of douglas, I asked if she had removed it she said no I asked why not ? she wasn't experienced enough to remove it and it was very minimal and not serious and I should not be experiencing anywhere near the pain I have described and most of my symptoms are not related to the deep endo found:
( constant diarrhea, crippling period pain, pain during ovulation, nausea, constant irritation and pain urinating and defecation, deep pain during intercourse, stabbing pains in lower left and right abdomen, deep stabbing pain in anus, lower back pain throughout month and fatigue)
were not endo related and that it had to be something else.
I was also in excruciating pain from the gas and my lower abdomen was on fire and cramping up, the nurses asked if I had a low pain threshold and wouldn't give me any pain relief I was crying and whaling ( i've had broken bones and handled that pain piece of cake so my pain threshold is quite high). The anaesthetist said I would require more pain relief post op than the normal person as I am on DHC nearly everyday but they didn't take any notice of what she said.
The surgeon spoke to me as If I was complaining about nothing then went on to say I would have no issue with fertility ( after 5 years no success) I also asked about my bowel being stuck she had no recollection of that and looked to her colleague and said oh yeah we cut that away, I thought you have just operated on me and can't even recall what you have done to me ??? she also said she couldn't find my cervix is this normal ????? I asked If there would be a follow up appointment and another surgery to remove the deep endo nodules but no nothing the options given to me were:
Have a baby
Go through induced menopause
Pay 100 dollars a month for the mini pill (cerazette)
I had a friend looking after me in recovery ward who has endo as well and couldn't believe what this surgeon was saying, from what I have researched there is no correlation between amount of endo found and the level of pain you experience, also that deep infiltrating endometriosis is supposed to be removed by an experienced endometriosis surgeon ??? Am i wrong??? I'm quite confused on what to think now.
My Gp said all my symptoms are by the book case of endo the surgeon has discredited that.
I have been suffering from anxiety and anger attacks post op and feel very let down and worthless the only thing im happy about is to have an actual diagnosis after 10 or so years of suffering and not being believed