I'm new here!: I was just wondering how... - Endometriosis UK

Endometriosis UK

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Jiordybrooke profile image
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I was just wondering how many other women here have felt worse after a diagnostic laparoscopy? I have so many concerns that the doctors are refusing to address and wanted to know if I was crazy or not really. Any help is appreciated ❤

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Jiordybrooke profile image
Jiordybrooke
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Hope1982 profile image
Hope1982

Hi

I am unsure whether I felt worse after diagnostic lap as it was so long ago & had 4 more since & now awaiting a hysterectomy, but I would say if you're struggling and convinced something is going on, push for further treatment, especially if endo was found. You know your own body more than anyone else, and have every right to get proper treatment! xx

Jiordybrooke profile image
Jiordybrooke in reply to Hope1982

Thank you so much! I have paid for so many appointments where I've been sent away after being informed there's nothing they can do for me because I won't take the mirena. They removed two patches of endo and trimmed several lesions to free up my ovary movement. I'm just extremely concerned because I have a 3 year standing belly button infection post op and have no idea what to do now

Hope1982 profile image
Hope1982 in reply to Jiordybrooke

Are you based in the UK? why are you paying for appointments? If your lap was two years ago, it may be possible the endo has come back if you're still in pain. I now refuse any hormonal treatment as my body doesn't react to it well at all, it is so frustrating because there isn't actually much they can do for endo other than hormone treatment or repeat laparoscopies to remove the endo, or sort whatever else is going on.

It is a horrible, frustrating condition, I just wish people knew more about it. Have you written down all your symptoms and taken them to your appointments with you? My doctor seemed to take me more seriously when I did that as I was just blurting out all these symptoms, even I wouldn't have believed myself - may be worth a try? xx

Jiordybrooke profile image
Jiordybrooke

I'm from new Zealand and my appointments are $30 for 15 minutes with my doctor :(

It's almost 3 years and in the last scan they did for me they told me nothing came up and in which case all referrals to the hospital have been denied due to "no new clinical findings" which means I don't qualify to see a gynae at all because they've told me I'm fine.

I have an app I've taken with me with symptoms recorded on specific days and all of my 35-40 day continuous cycles, they keep telling me that I'm fine and that it's normal to feel this way with endo. They offer me tramadol which is highly addictive and not safe for my liver, in fact it makes me nauseous and the pain doesn't go away. It's safe to say I've given up on doctors all together after my terrible experience trying to see so many different ones, but they all say the same. If there were any home remedies for the infection and weeping or even for cramps I'd be open to trying anything? I'm trying to live organically currently and alot of symptoms have subsided since doing so but the periods are still horrific and my belly button won't heal. Sorry for the rant I never really post like this and I feel like ii should be because it's hard to vent all the time at home, my partner does enough as it is he's a gem!

jburd profile image
jburd in reply to Jiordybrooke

Look into a healthy, organic, lab tested cbd oil for pain and nausea. You can also use it topically for wound healing. If you are worried about your liver, suppositories bypass the liver. Not sure about laws in NZ, but cbd oil is thc free and legal here in the US. It will not get you high or show up as a drug on a test. I gave up on doctors telling me to suck it up because i'm a woman. Pain is not normal just because we're female. I hope you find some relief soon!

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