Hi everyone, I'm new here. I found this forum whilst frantically searching for someone to talk to, someone who will listen instead of shutting off whenever I talk about my diagnosis.
I'm 17 and got diagnosed with endometriosis in April of this year. I won't lie, it's been tough, as I'm sure everybody feels. I feel quite lucky in the respect that it only took 6 years to diagnose me, whereas it takes other people 10+ years.
I first started having problems when I first got my period at 11. I always knew something was wrong, but was always told that I had "more painful and heavy periods than most girls". Great. So, I just shut up and got on with it through fear of just being told it's normal. I knew it wasn't normal but nobody seemed to listen so I just suffered in silence. And that's what I did until April 2016. This is when I got a new gynaecologist. She took one look at me and demanded answers as to why this poor 16 year old girl had never been taken seriously. I asked myself the same question.
She trialled me on different medications, which were all unsuccessful, so instead of mucking about and making me wait whilst she 'decided what would be best', I sat there in the consultation room, signing a consent form to have my first laparoscopy. The waiting list was extremely long, but I said I didn't mind because I'd been waiting since 2011, I'm sure I can wait a little longer.
I had my laparoscopy in April this year. It wasn't the best of experiences, I won't lie. The next few months were spent crying into my partners shoulder as he told me everything would be okay. I didn't believe him, but I tried my best. I'd already been told that I'd have fertility issues when I'm older due to family history and issues, and hearing that I'd got endo which could further increase my problems was a real kick in the teeth to the both of us.
Since my laparoscopy, things have been - not that great. The first 4 weeks were brilliant. I could wake up and not cry. I had really low pain levels. But then things started getting bad again. I went to the doctors, and she suggested the mirena coil, which I was really hesitant about because the thought of it made me cry and have a panic attack. She suggested the DepoProvera injection. I gave it a shot, and tried to carry on as normal as possible. It didn't really work. I gave it another shot. Still not working.
And that brings us to today. Currently sat at home crying my eyes out because the pain is so bad and I've been given nothing for it. I've got to wait for a referral to see a consultant back at the hospital, but goodness knows how long that will be.
Sorry this was super long! It's not the full story in all it's glory but there we go. Just thought I ought to share my story as well as read other peoples! If anyone has any questions, hints or tips feel free!