Endometriosis UK
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Tired

Hi

I'm struggling with the feeling tired 😴 I have always been a person who could sleep well. Before endometriosis diagnosis I kept feeling very tired and would be playing doll houses with my daughter and literally fall asleep. After laparoscopy and diagnosis & treatment I had more energy. But last few months this one in particular I have a feeling of exhaustion just wave 🌊 over me in the day. I get up do school run 🏃 I get back feed the dogs grab a drink etc. If I sit down I drop off to sleep. The other day I sat to do some studying when I woke up I had dropped off for three hours!!!

Yesterday I got back from a school show I felt the tiredness as soon as I home. I feel dizzy 😵 and very very tired as if I hadn't been sleeping! I'm tired of feeling like I also got very moody towards my husband little things seemed big things. And of course lead to us arguing I know I doing it but can't help it. I'm just so tired 😴. My bursts of energy are v short lived. My endometriosis wasn't all removed sadly as couldn't get it all of one overy. I'm on the pill some bad bleeding last month but I have continued this month. My pain in my side is manageable at present worse when on a period then sadly no pain relief seems to touch the pain!

But I don't know what to do about this tiredness I've tried energy drinks and lucozade and even energy tablets . But I get a short boost of energy then I'm tired again. I have had enough of it my husband says go to the doctors but what can they do?

Any advice?

Thanks Tracey

9 Replies
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Have you tried women specific vitamins? i've always thought they were a load of rubbish but this week I was at my wits end and had to call in sick because I was too exhausted to even move. I started taking vitamins and within the week I found I had my energy back, idk if it's placebo or what but the results have been amazing. I rely on Lucozade maybe a little too much but I now only use it if I'm feeling run down which is often by the end of the week. I've also found that coming home and sitting upright or doing something til bedtime helps, as the second I come home and lie down I feel so much worse, so now I keep going or just sit upright til bedtime and then when I lie down in bed I'm out like a light x

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Hi

I will try the vitamins I need to do some thing I can't carry on like it. At mo I'm sleeping 24/7, tired tired tired 😴 that me!

Good to hear the vitamins helped you I will buy some and fingers crossed 🤞🏽. I need a very big boost I wake up tired 😴 my small energy boost is getting less. And now on a diet I can't drink my much depended on original lucozade 😩😩.

I hate this endometriosis!

X

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Big hugs. The same thing set in with a vengeance after my first lap.

Chronic pain in itself can cause fatigue as can inflammation and adhesions.

You could get bloods checked for any deficiencies b12, d, iron, magnesium, zinc, thyroid. My d was low, and after surgery my iron.

Also you can try to reduce inflammation through diet. Dairy and gluten are inflammatory foods and you can take things like ginger, turmeric that have anti inflammatory effects.

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Hi Starry

Thank you for replying I think I might start some vitamins see if that helps. I have gained a lot of weight as well since the laparoscopy. So now I'm on a diet I will try to add in foods rich in iron.

Last resort will be bloods as I need to change GP as I put in a complaint last year. & the GP when I met him to discuss it wasn't happy with me. So I have made clear I be moving surgeries after 21 years lol 😂 it's crazy but got to be done sadly.

I'm hoping the tiredness improves as I'm still 😴 tired and no energy to do any thing. I need to work but feel tired just after 6 hours shift let alone a 12 hours. I'm in my 40s and feel in me 80s. My dad in his 70s has more energy than me!

😲🙃😴

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Good luck. Xx I've been referred to a chronic fatigue syndrome team finally by my surgery. I think it does seem to be about finding the right doctor and persevering.

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Hi 👋🏻 I also struggle with tiredness, I’m currently sat at work like a zombie!! I went back to my gp last week and my doctor has been really helpful and understanding so I would recommend changing if you feel fobbed off. I had my bloods done and waiting for results this week as she is checking what starry mentioned! Also they couldn’t remove all my endo and my pain has come back so I’m waiting to see a endo specialist xx

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Hi Clover123

They couldn't get all my endometriosis either. I never New I had it I went to the doctor originally the year before last as my periods had stopped. That then led to tests scans MRI etc. Apparently the endometriosis was worse than the gynaecologist had thought & they couldn't get it all.

I just don't want to keep feeling like I have been today I have felt bit more alert. But I know later I will be tired again. I haven't been working much but I need to so I have just got some nights this wk. But Thursday I study 9.30-5pm and I just agreed to work a night shift as well. 😴🙃😩i normally say no but as I need the money I agreed.then work Friday night by Saturday i be a zombie.

Xx

Good luck with your results let's hope some one finds a cure for endometriosis soon.

And people that don't have it don't understand or just say oh loads of people have it. As if it's nothing!

Xx

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I suffer really bad with tiredness to some weeks i’m just exhausted and everything is an effort, I have a gp appointment tomorrow so will see what they say I might try some vitamins xx

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I've always worked office jobs all my life. Full time when I wás younger and the tiredness used to overwhelm me I would fall asleep typing at my desk like I'd wake straight up but so tired that my eyes shut and i would nod off. It wasn't till a few years ago i found out that chronic fatigue was a symptom of endo. I had been diagnosed at this point just didn't know about the fatigue. I struggled through with tiredness and office jobs until last year where i thought I would have to get something where I am on my feet . So I became a dental nurse that in itself is such a tiring job and sometimes during long treatment I can feel my eyes getting heavy and I have to just try focus on staying awake. It's so hard and people who don't suffer from it don't understand it. Xx

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