Hello to anyone that reads this. I am 22 years old and I am rundown. I am in pain almost every single day and no one seems to understand. I have seen specialists and had 2 surgeries within a year, tried several hormonal and homeopathic therapies and nothing has relieved the pain. I bleed almost all the time, I'm exhausted. Often I have to go to the hospital just to get some relief but I hate going because they just think I am seeking drugs and don't seem to understand what endometriosis is. One ER doctor actually told me I was just confused about what period pain was. It is nearly impossible to go to school or work on a stable, frequent basis and my school won't recognize it as any kind of disability. I almost constantly feel stabbing pains and some days just rolling over in bed is too much pain. My boyfriend tries to be supportive as does my family but they just don't understand what the pain feels like. It's chronic and it is getting worse. I just want relief. I have had endometriosis since I started getting periods but wasn't sure what it was until I was diagnosed a few years ago. I am still so young and that is what is scary. I don't want to go through this for years and years and years. I have tried really hard to do everything the doctors asked. I went on the endometriosis diet and exercised and I've lost 35 lbs. I continue to eat well and exercise and avoid the foods they say causes inflammation. But I can't seem to get rid of the pain. I also seemed to not be able to stop bleeding. I wish someone would make it go away, I wish everyone knew about what I, and so many other women, are going through and stop just looking at us like we just can't handle period pains. It hurts to walk, it hurts to sit, lay and stand. Recently when I am bleeding heavily it hurts to breathe and I am short of breath. The pain goes from my back hip down my leg and hurts during intercourse, as well as after, usually for days after. I just want someone to tell me that they know exactly how I feel. I know it's unrealistic that anyone can give me an answer to make it all go away but I am tired of being so tired. My energy is gone, my hope is gone and the only thing that is a constant is the pain. Last Wednesday the pain was so unbearable I thought about breaking one or some of my fingers just to distract for even one second away from the endo pain.
I want to be back to myself. To have energy to do fun stuff with my boyfriend, to finish school and go to work. I want to act my age and enjoy this time in my life.