Opening up - one of them days. - Endometriosis UK

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Opening up - one of them days.

Samii12x profile image
9 Replies

I’ve not been diagnosed yet, but is one of the side effects of endo fatigue/tiredness?

I’ve literally had a breakdown this evening, in tears because I feel like I’m constantly tired, I struggle to stay awake and to come home after work, even though I only work part time hours. I struggle to cook, I feel like I’m so snappy and horrible to everyone around me because I’m just so tired. I have cried a lot this evening because I just feel exhausted and unhappy. It’s just nice to express and to talk to other people who may experience a similar thing!

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Samii12x profile image
Samii12x
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9 Replies
nikaykay profile image
nikaykay

I’m not diagnosed yet either but I feel exactly the same, exhausted all the time, grumpy, emotional. It’s like permanent PMS haha I feel sorry for everyone around me sometimes.

You aren’t alone! X

Littledisneyprincess profile image
Littledisneyprincess in reply tonikaykay

Snap! It's horrible! We are not alone!x

Boodie profile image
Boodie

Hi there I'm sorry your feeling like this. Your not alone. I too have had a crap start to the year, heavy bleeding with clots. I feel nausea sick dizzy. I'm sick of it all. I don't think I've had a day I havnt cried. My suffering is ongoing . I don't have endo but suffer with permanent after effects of pelvic inflammatory disease diagnosed in dec 15. I have heavy bleeding with large clots unexplainable and I'm now on prostap to give me a break. Message anytime x

Hi Sammii12x,

You poor thing. I hear you.

I haven’t been diagnosed with endo either but my gynae reckons i May have PCOS now.. although she cannot confirm. Which is frustrating.

I was put on the mini pill to manage chronic pain and the one main struggle my body has had adapting to it, is the tiredness.

I’ve felt like you, in tears of exhaustion, down in the dumps and just having zero energy. I went to see my gynae and explained and she said it’s definitely the side effects of the pill due to the progesterone which is the ‘tiredness hormone’.. I have managed to force myself into keeping busy so I think less about how tired I’m feeling.. I know this sounds ridiculous, but it’s helped me. I don’t know if you are on the pill the same as me or on some form of synthetic hormone, but this could be the cause if you are?

I also took it up on my myself to buy some iron tablets. Maybe give those a whirl?

If not, maybe ask your doctor for a blood test and go from there ? I hope that maybe just one thing I’ve said has helped.

Chin up, you got this, go for a walk, get some fresh air, do something you love to do.. build your mood up. Here to chat if you want to. 😊x

Yes, fatigue is a very common symptom of endo. You’re certainly not alone. Big hugs!

kitty270 profile image
kitty270

Try Vitamin D and Iron. Both notorious for helping with fatigue. I have endo stage 3 and it effects me everyay. I have, what I call CFS days, which is chronic fatigue when even moving my chest up and down to breath is exhausting. On these days I tend to pass out for hours but still when i wake I am still tired. It never ends! But vitamin D can help and iron supplements. Better yet take a multi vitamin daily and you'll be surprised at the difference it has! Hope this helps. Take care of yourself and we all have these moments that last for days on end so definitely know how you feel and your never alone x

Lj1984 profile image
Lj1984

Breaks my heart to hear what u have put Samii x

I promise you are not alone, dont bottle it up, cry when you need to, it's cathartic.

One of my main issues is fatigue, most days I struggle to get out of bed and when I do i fall asleep on the sofa.

I'm yet to find something that totally helps but I know i feel worse when I eat junk and when I don't exercise (however it's a catch 22 as I can't be bothered cooking and exercising tales energy I hardly ever have). but have sort of got used to it.

Just remember your not alone. I only found this site a month or so ago and it's been a great support already x

Samii12x profile image
Samii12x

Thank you for all the lovely messages! It makes me appreciate everyone of you that have took your time out to comment back to what I’ve wrote.

I’m very lucky to also have a supportive partner during this hard time.

I think it just all gets a bit too much sometimes, being in pain and never knowing if it’s going to be a good or bad day, just being so tired that I can’t sort the house or make dinner, I snap at my son who really doesn’t deserve it (this is one of my biggest regrets and I beat myself up about it all the time) but most days are such a struggle.

Thank you for all your kind words and advice. I’ll take everything you’ve all said and hopefully it will help towards my recovery! ❤️

jparrott profile image
jparrott

That's a very common side effect of endo. If you can change your schedule to be able to take breaks or even naps it would help a lot. I also find acupuncture helpful to help boost energy and even out my emotions.

Be sure to prioritize taking care of yourself!

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