Endometriosis UK
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Retrograde Menstruation again??

Hi so 14 months ago I had a sudden on set of severe right sided pain, after various test and 2 weeks of begging the drs to do something, they took me in for a diagnostic lap + appendisectomy. The cause I was told Was a retrograde menstration bleed. I was told I did not have endo, however this was a general consultant not gynea. Since then I’ve not had too much of an issue, I get bad pain when ovulating (right side is worse) and in the last 4-6 months I’ve had the odd twinge pain on my right side which passes. However 5 days ago I had sudden severe pain in my right lowever abdo, it’s too early for ovulation and the pain has not gone away, naproxen doesn’t really help and I currently can’t work with the pain. Dr rang today and didn’t listen to me at all, thinks it’s thrush, I’ve had thrush before this is not thrush!! I have drs appointment tomo so hoping for more answers. However I wondered if anyone else has had to go in again for a washout after a reoccurrence of RMB and whether I should just head up to a and e and ask to see gynea?! Any advice welcome.....

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I feel your frustration- I had a laparoscopy done June due to severe pain in my lower left side- turned out mine was endometriosis in pod- I conceived afterwards but lost the baby very early and like you I have had pain back in my lower left side but my fertility consultant doesn’t agree that my endo is back- all the gps who are treating my symptoms do but he did book me to see his colleague as my womb lining looked uneven on a scan he ordered.

I am unsure why your laparoscopy was not done by a gynae. Seems odd...

It is awful to have pain so dismissed- I’ve been there with my gp- so unprofessional. In the end I saw other drs and found them to be very supportive- and I’ve avoided my gp ever since...

I actually find lady drs to be more sympathetic towards gynae issues.

I think the gp should honestly refer you to a gynae- I would really push for one. Pain is an indication something is not ok and shouldn’t be ignored.

As for A&E they are unlikely to send you to a gynae unless it’s life or death. I went to A&E early this year and all they did was do some blood tests and sent me home to the care of the gp! ( I was lucky I was under a gynae already and he took my pain seriously. )

If you don’t get anywhere with the next dr I would bring someone in with you next time-hopefully you won’t need to.

Keep a pain diary-it will give the gynae a clearer idea of what is happening.

Also I found by cutting out gluten and going lactose free has eased my pain a little.

Good luck xoxo

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Thanks for the reply.

My op was done on an emergency list so was done by the on call consultant. (I work in theatres so know this is normal) . They said it could happen again, though but they didn’t offer advice on what to do if that happens. The pain is quite acute so I may be better going to a&e if things don’t improve, as I’m not under anyone. Like you said hopefully things will be more clear after the drs tomo. If I was at work I’d go see one of the gynea consultants I work with but I’m off sick cos I can’t work in this pain and painkillers make me loopy.... it’s such a hard condition to search on and find info everything always just goes on about endo and says the body should observe RM blood....

thanks though for sharing your experience

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