Endometriosis UK

Has the coil helped anyone?

I had the coil fitted during my laparoscopy on 14th December 2016 where I was diagnosed with endometriosis.

The coil didn't help me, I was in more pain than before. I was still bleeding, and it felt like I wasn't on any pain relief on the pill (the pill had been most effective for me even before I had the coil)

Before I got put on the pill, I was extremely ill on my period. I was physically sick the first few days and couldn't move at all on my period.

When I had the coil I felt exactly like that....so of course I had the coil taken out and gone back on the pill...

Since being in the pill Iv gone back to my old normal pain.

But I feel pressured by my mum to get another coil, as she has had two coils and her second one isn't as effective for her but she doesn't have endometriosis

I don't want to get another coil due to the experience I have had, and do not want to get another to go the though the same thing and find out I was right and the coil isn't helpful

Has anyone had the coil? Did it work for you? Any advice would be helpful

Thank you

Emma xx

6 Replies
oldestnewest

My gynecologist advised against me getting the coil fitted due to having endo and PCOS (I didn’t want it anyway but it came up during treatment options.)

I have not had the coil but don’t do something you’re uncomfortable with just because someone else is trying to pressure you into it. You know your body. I’ve seen many women on forums with endo or PCOS and I haven’t seen any positive experiences with the coil.

I hope someone with experience will be able to shed some light on your dilemma. But again, if it didn’t work before it is unlikely to work now. I personally wouldn’t try it again if you had a hard time.

I hope you find something that helps! It’s not easy 😔💗

1 like
Reply

Thank you xx

Reply

Hi Emma, I had a coil fitted during my second lap in June 2015. This also coincided with the end of 6 months on zoladex. The coil seemed to be effective for about 18 months - I didn't have any periods and the cystitis-like symptoms I was experiencing faded away. However, those symptoms started to come back again at the beginning of this year. Doing some research, most websites mention the mirena only being effective for about 18 months to 2 years for endometriosis, and that it doesn't work at all for some people. Everyone seems to react differently to different treatments, so you have to try and find the best option for you personally. I now take a progesterone only pill too and so far that has kept my symptoms under control. I hope you find the right option for you. X

1 like
Reply

Thank you xxx

1 like
Reply

Please talk to the Advisors at 'Endo UK' who host this site. It may be that your endo is of the type that needs some special treatment, beyond what they can/should do in ordinary NHS Gynae Depts. Also, ask them if there is an 'Endo Uk' Support Group in your area, if so, the members may have specific info on the best medics and treatment centres in your area.

I would also ask your GP receptionist for a copy of all letters, operation reports and test results, etc that have been done (if you have all your own copies, even better, as there may be a charge for 'finding/copying' if the documents are from a while ago) as this will be useful info for making sure your treatment is following the best possible route. Sadly, we all have to become our own best 'Endo' experts, as the area is underfunded and overworked and even GPs often don't know the best routes to follow.

1 like
Reply

Thank you xx

Reply

You may also like...