Need help! Horrible pain and bleeding on Lupron

[clairey9888]

I'm hoping someone might have insight/advice for what I'm experiencing. I'm currently one month into a 3-month injection dosage of Lupron Depot (its a 3-month dose in one injection and I received the injection Aug. 14th). Following the injection, I felt great which is saying a lot considering I underwent 3 separate surgeries this past summer and have really been struggling with post-op complications and endo pain.

I was told that on the Lupron I'm not supposed to have pain or bleeding. On Sept. 9th, completely out of the blue and after I had 3 1/2 weeks of being basically pain free, I experienced a sudden and massive onset of abdominal pain and bleeding. I was admitted to the hospital and the gyno team on call told me some women experience an estrogen peak during their first month on Lupron and that his episode was most likely a "bad breakthrough period" that would pass by the end of the week. I was sent home with high dose pain medication and told to wait it out. Two days later, the pain got even worse to the point where I couldn't even sit up straight or roll onto either side. The gyno team at the hospital insisted this pain was unrelated to my endometriosis because you're not supposed to "feel pain" while on Lupron. Again, after 2 days in the hospital I was sent home with more pain meds and told to basically just deal with it.

Currently, I'm still in a huge amount of pain. It's mostly on my right side where my ovary used to be (I had my ovary taken out in June).

Could this be nerve pain or edno pain even on this hormone therapy? I have a follow-up appointment this Thursday and would like some advice on how to best advocate for myself/questions I should ask my doctor.

Thank you so much!!

Claire

[ShayDani]

I am so glad you posted this. I'm sorry about your pain but this proves my pain is not in my head. My last period ended two weeks ago, I got the injection the last day of my period and I was feeling good. I felt no more pains, I had more energy and began walking for exercise. I didnt have the side effects people were telling me I would have. Even my appetite decreased. And then all of a sudden this past Monday out the blue I started bleeding. I was thinking why am I bleeding again this month?? But the cramps were very light. I didnt need to take my prescription pail pills like I had in the past. And my doctor said the bleeding is ok as long as I'm not soaking up two pad a hour. Then though this week, the bleeding got heavier and the pain became more intense. My back and lower abdomen is in so much pain. I'm not soaking a pad every hour but it's still heavy bleeding to be in day 4. I got the injection to stop my periods and it seems like something is worse. Years ago, I tried birth control to stop my periods and I bleed for 2 weeks and ended up getting two blood transfusions. These doctors dont understand that hormone therapy does not work for my body.