Endometriosis UK

My mirena coil is stuck in scar tissue - it was only put in 5 months ago during my 1st lap!!

Hi everyone,

I had my first lap in may where it was discovered that i had stage 3 endo, which they managed to remove. I had a mirena coik fitted during the surgery to prevent it coming back. The problem is that the pain is back worse than ever, its so bad i can only compare it to how i felt after my second csection (which was bad!).

I have been back to see my consultant who first put me on antibiotics, which did nothing. I went back again the other day and she said the pain could be coming from my coil, she then tried to remove it, the pain was unbarable, however this did not work. She thinks its stuck in scar tissue and i will have to go in a couple of weeks to get it out while asleep.

Im a bit worried about this, has anyone else experienced anything like this? Also, she is adament that it cant be endo causing the pain as she removed it, i cant help but thinking that she might have missed some, i dont know what to do now, any help will be appreciated!!

4 Replies
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Oh hun. This sounds awful I'm so sorry your going through this. I had the coil it was agony getting in I passed out and vomited didn't enjoy having it although I kept it for 18 month give it a long good go never again getting out was bad but better than getting in.

It is very possible for endo to be missed in surgery especially if the surgery was performed by a general gynae. So that's quite possible

Iv had one c section and I know it will be worse if I have a second it was horrific. What I will advice for scar tissue once your coil is removed is to take serrapeptase it eats away at scar tissue iv took it since Feb and have managed to clear my partially blocked tubes it helps loads and I'm sure if I continue the band I have will have gone that's why I started taking will get confirmation at my next op. Hope everything goes well hun wish you all the best 💗😘

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Thank you hun, i will get some of those, im glad they are working for you! Im kind of thinking about getting a second opinion about the endo as i cant see how the coil could cause this much pain.

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If it's stuck in scar tissue I could imagine you being in a lot of pain. Endo is often missed with general gynae defo a possibility. Just to note with the serrapeptase you must take on an empty stomach easiest way for me is soon as I wake with a glass of water don't eat for an hour then your good to go 💗😘

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Hi Emag I know you had this ages ago but I just wondered how you were & what you had done since? I had a hysteroscopy, ablaition & the mirena coil fitted all at the same time 6yrs ago. Well, today they tried to remove it to replace it but couldn't as it's stuck in scar tissue from the ablation 😢 Oh my word the pain was so bad! I've got to go in hospital to have it removed under ga 😔 I'm not sure if I want another one fitted now either (if they'll let me after the procedure). Sorry to jump on an old post x

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