I haven't yet been diagnosed. But from scan and tests he gynae mostly thinks it endo that I have.
I have to wee ALL the time though. I tried to not drink as much to see if I still have to go, and I do. Even wake ups during night.
Is this a symptom? Or can it be? I just assume maybe if endo is on my bladder.... ?
Anyway it's a right nuisance!! I haven't had any accidents, but nearly have!!
I'm exactly the same, the pain is around my right ovary and it's like suddenly I'm really desperate for the toilet, and then 20 minutes later I can be desperate again! Given where I work, the toilets are in another building, and they get really shifty with me having to leave the building constantly! I always assumed it was from having endo on the bladder but I haven't had this confirmed in myself yet x
My pain is left ovary! But exactly the same! It's such a nuisance xx
I've the same problem. My lap and cystoscopy didn't show Endo on the bladder but the pouch of Douglas was filled, so the swelling of that pushed on my bladder making me want to pee all the time. It's worse the week before I'm due on (every 15 mins) but even on a 'good' day, I go every hour.
I often wonder what a good day is now lol
Oh that's interesting! Itll be good to find out if I have the same too. X
Hello I suffer the same problem needing to wee all the time and I suffer from pain over my left side/ovary/hip area. I have endro and due to the nature of where it's growing and how big it is, it causes swelling which makes me pee more often!! So make sure u follow up and get answers xx
I was wondering if this was normal as well, glad to see im not the only one!! I also get severe almost, pass out in pain cramps when my bladder gets even slightly full, all my pains on my right side though. Roll on my lap so we can finally see what's happening on the inside!!! xx
Sorry to hear you are suffering. I have had 3 laps over the past 4 years (both diagnostic and treatment) and no endo has ever been found on the bladder or bowel however my incontinence is quite bad now. Tena lady do a really good range of slim line pads and have been a god sent!
Hope you get some answers soon xxx
I have endo inside the bladder removed by urologist, but it has most likely went through the bladder wall from the outside. Either way, in or out, I have frequency, urgency, and pain - a bit all the time (dunno what's normal anymore) but it's unbearable a few days after my periods end, until ovulation. GP assumed it was interstitial cystitis, a condition frequently associated with endo, so prescribed me 2mg Valium to relax all muscles including bladder, it works a little bit for the pain for not for the frequency!
Hope that helps
Hello I'm 4 days post lap I've been told on MRI I had endo on the bladder but when the doctor ( locum) done my diagnostic was told nothing on bladder but everywhere else. Although when I had a cystoscopy done I was told I had borderline IC and trigonitis. I'm now thinking actually it could be the endo on the inside. Have you seen any pics of what it looks like?
The pics I saw were of bright red veins they looked really inflamed on the inside of my bladder . Looked like spaghetti junction was pretty crazy.
Hey. I think that’s what IC looks like. My endo was a solid 2-cm round mass inside the bladder (it turns out it was connected to a 3-cm endo nodule on the outside of my bladder - awaiting lap to remove it all); I don’t know how else can endo present I’m no surgeon but I think it’s usually red/brown/black spots/nodules. Hope it helps.
Was your lap done by a BSGE excision specialist with a urologist on site? If so, I would trust their findings. If not, I would doubt them very very much.
Good luck 💪🎗
Hey it is a specialist endo centre but the surgeon who done my diagnostic was not a specialist just a locum consultant 😪 this was because they can't hit targets apparently if all specialist do diagnostics. So I don't even know I anything has been removed . Just was given a discharge letter stating we're endo was found and that they didn't treat endo in the POD near rectum because needs specialist attention.
I just feel like I'm being let down at every stage it's so frustrating why if they knew beforehand were all the endo adhesions were could they go straight in and just do the 1 op and get rid of everything. Now I've had half a job done with just a generic doctor and now waiting on more treatment options.
How many more failed ops are women going to have to go through.
😪 it so sad
I had very similar symptoms with lots of pain too. I had endo inside my bladder and my bladder had become fused with other organs. I had surgery 18 months ago to remove the adhesions and part of my bladder and am now weeing less often and without pain.
I'm having a similar procedure on my bowel next week.
Hope you get help soon as I know how miserable it can be.
Good luck 🍀
Oh good luck Cath, I hope it goes as well as can be !
I don't have pain with mine. Just wee all the time and have to get up during the night at least once. Can't wait for my surgery date!! Every time the postman comes I think it's going to be here
Endometriosis and weight loss? 
Endemetrioma = endometriosis?
Sigmoidoscopy and endometriosis 
Daily pain, frequent urination, pressure feeling can be signs of Endo? 
Endometriosis on Appendix 
