Scared...what next: I got diagnosed with... - Endometriosis UK

Endometriosis UK

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Scared...what next

Niclou88 profile image
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I got diagnosed with endometriosis 6 month after having my son by c section due to placenta previa.... I was in constant agonising pain. I got referred to gynaecology who took me to theatre for explorative surgery and ended up having endometriosis and adhesions around my left ovary and womb, they also gave me the marina coil...I then began with pain 3 month later the surgeon was contemplating a hysterectomy however I am only 29 so he said he was going to give me the benefit of the doubt, so I went back for the same surgery as I originally had and had adhesiolysis and endometriosis removal and removed the coil as I had very irregular and painful periods (now on pill) a year after my original one. Now 2 month after my latest surgery I've began with agonising pain yet again, same place as previous times, been to gp and being referred back to gynaecology....now I'm thinking it will be hysterectomy next and I'm petrified

:(

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Niclou88 profile image
Niclou88
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GraceFace profile image
GraceFace

Hi, I don't really have experience of this as I don't have kids. I do have endometriosis though, and I'm sure the Gyane won't consider a hysterectomy when you're only 29. Plus there's lots of research to show that a hysterectomy won't actually cure endo now anyhow. Best of lucky and big hugs x

Niclou88 profile image
Niclou88 in reply to GraceFace

Thank you grace. I hope that is the case, however before my last surgery they did say that was my last chance then it would be more drastic action as nothing has helped and it's just became worse

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