coming off prostap: I have recently stopped... - Endometriosis UK

Endometriosis UK

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coming off prostap

jmoss
jmoss

I have recently stopped prostap injections and have had 2 periods since then (last injection April). My periods have been lighter but pain back again. I am really tired all the time and feel quite nauseas, upset tummy- basically feels like morning sickness but after 3 tests most defiantly not! Doc has prescribed anti sickness tablets which help and had load bloods tests this mornign, has anyone else experienced these types of symptoms with endo or could it possibly be just my body regulating hormones. thanks in advance

5 Replies
oldestnewest

Sounds like normal endo symptoms to me sorry :-( Is that not the way you felt before prostap? I'm enjoying what's left of my time on these wonderful injections! I don't ever want to go back!! Have you got surgery soon?

jmoss
jmoss in reply to Cornish40

These symptoms are new to me but after reading other posts seems like a flair up just not getting much time now in the month without some sort of symptom! Waiting list for hysterectomy in NI is 16 months... thinking at this stage myself should have stayed on injections!!

Thank for replying x

Cornish40
Cornish40 in reply to jmoss

Hi no worries yeah they are quite hardcore but it's not unheard of to stay on them with add back hormones for a year or so. That's a long waiting list..yes I had all those symptoms for years until March this yr when prostap became my friend. I was always absolutely exhausted feeling sick having period pain almost continuously a few days respite in between.ä and catching colds and things all the time. It's also helped with my cysts and fibroids. So you having a hysto?

jmoss
jmoss in reply to Cornish40

Yes have partial hysterectomy but so many questions unanswered going to see gp again and ask for referral to accredited centre ... no lap to diagnose consultant just said yep sounds like endo after experiencing no symptoms on prostap .... we'll know for sure when in there he said! You feel like you are going mad!

Cornish40
Cornish40 in reply to jmoss

Yes get yourself referred to a bsge centre as soon as. General gynae tend to recommend hysterectomy due to endo being a chronic disease so supposedly preventing multiple surgeries but hystos aren't a cure-all as I'm sure other people will mention. But yeah it can make you feel like you're going mad, trying to explain to doctors and getting nowhere! Hope your symptoms get better X

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