A little rant!!!

[staceymacg]

I'm so glad I found this forum because it gives me great peace of mind to know I'm not alone and there are so many women helping each other with this illness.

You know what I hate? People who don't understand us and don't even attempt to try. I hate when people praise the NHS and shut you down when you explain that in 7 years, they've done incredibly little to help you. I can't help but feel totally abandoned and let down by so many doctors and the NHS system in general. 7 years is not an okay time for diagnosis and that is the average time for all women. That is NOT okay.

I hate when people constantly try to make you think positively. Some days, I am miserable and some days I am allowed to be miserable because I am a 20 year old living in a body that feels like it is failing me. Sometimes, just sometimes, I need to break down a little.

It is exhausting. It is lonely. This disease is awful and it is not acceptable that so many women are expected to suffer for months, years, until diagnosis.

I am just shocked that endo is so unknown. Too many people have no idea what this condition is and just how crushing it can be both physically and mentally.

People just don't get how exhausting it is, how soul destroying it is, to be in pain every second of every minute of every day.

I just needed a little rant because too many "friends" of mine have come and gone and recently, I haven't felt more alone.

[Crystalee]

Hi there,

I'm a 22 year old girl from Australia!! And you literally hit the nail on the head meaning what you have just said is exactly how I'm feeling!!!!

[Crystalee in reply to Crystalee]

I feel so lost, so confused and more than anything scared. I don't know what my body is doing, I don't know why it's doing this and I just pray everything will be ok xxx

[staceymacg in reply to Crystalee]

I've just hit my breaking point today! I've had enough of people telling me to be positive and to love the NHS because they're trying to hard. After 7 years of suffering I am allowed to not be positive!! I am allowed to have lost all faith in the NHS because in the entire time I've been struggling they have done incredibly little to help me except belittle me.

I'm so sorry you feel the same, it's a terrible feeling. I'm always here if you need a rant💛 Xx

[Crystalee in reply to staceymacg]

I know exactly what you mean, I feel like no doctors or nurses or anyone is giving me an exact diagnosis. I feel like they don't even know 100% what is going on in my body. I'm sick of complaining about it to the people around me as they have their own issues to worry about in their own life. No don't be sorry, the universe decided for this to happen and it's no ones fault... it's just life I guess

Thanks I'm always here too as we are both of similar age and can relate so much. This is all new to me as I only found out about this 4 weeks ago today!