Feeling overwhelmed with it all - small rant

[OstaraMoon]

Hi everyone,

It's been so tough endometriosis has really taken over my life - particularly the last year. I have had so many tumours (around 12) removed in the last year alone, the last one was 30cm diameter and parautheral. It's these ups and downs and the constant loom of cancer as each tumour they say well it's grown so fast we don't understand why. A couple of months ago they diagnosed me with nonmalignant cancer that has been triggered by the endo but I was told all would be ok after the operation as the last tumour type was so rare. Then a couple ago weeks after they did a scan and found two nodules and cysts in the uterus (actually the first uterine ones I have had) but they said it's nothing to be too concerned about but given the situation, they would want to do a full hysterectomy (not sure if that is cancelled now as I don't know if it's seen as urgent). They needed to do an MRI because they were worried about if the endo had spread. I just got the results back and now it's in my pelvic ligaments, uterus, right fallopian tube and surrounding tissues (this after it was 'removed' last year). I haven't been able to work for a year, it's crazy and now with this Coronavirus my husband who is a freelancer/contractor because he has multiple sclerosis, it's just easier for him to manage, has no work. Phew, this virus is making life so hard for us. I feel like I am failing my family as I haven't been able to work for a year and now we are in a bad situation financially because we have no savings due to my illness. We aren't on any benefits or anything so we have nothing coming in. I know a lot of us are battling and it's hard so to those who are in a similar situation as I am sending you all love and courage. I am finding ways to make some money so we don't get even more stuck. I just hope we make rent and electricity this month! Let's just hope this virus doesn't keep us all down for too long. Thanks for reading my rant

[Moon_maiden]

Sorry to hear you’re going through so much at the moment.

It gets incredibly painful and uncomfortable at times.

I do empathise as I’m struggling to do much at present.

Shouldn’t you both be claiming benefits, you may well get disability as well. If you do make a claim put forward every scrap of medical evidence you can.

I hope you manage to get everything sorted ASAP and nothing to do with Endo becomes more serious.

[OstaraMoon in reply to Moon_maiden]

Thank you <3 Perhaps we could try and see I have a ton of medical evidence so hopefully they can help us. I also read somewhere that the government is going to help small business with a loan so my husband is going to look into that too

[Moon_maiden in reply to OstaraMoon]

I can’t see why you wouldn’t get help. Even if you have your own business you can still claim benefits if the income is too low, things like rent. PIP isn’t based on income. They’ll take the date from when the form is filled, it’s difficult to back claim, possible but very hard. Anything is worth a try. Speak to CAB as well, ESA (sick pay), etc. It’s very easy to get bogged down with everything, I’m sure you’ll get there.

Look up business grants as well, there are many charities and trusts that can help as well as loans. The library often has books on grants as well as online. With your husbands condition that society may have suggestions and grants.

Good luck, let us know how it goes 😊

[OstaraMoon in reply to Moon_maiden]

Thank you so much for this, it really helps to have some guidance xxxx

[Moon_maiden in reply to OstaraMoon]

If I can, more than happy to 😊

Let us know how you go.

[Amusegirl in reply to OstaraMoon]

I second this. You are more than entitled to PIP ongoing (even when he works as it's not means tested to income), make sure you only ever give them a worst case scenario because they will try manipulate you into saying you can function, so they can turn you down. Don't fall for it in the assessment, they are smiling assassin's.

You are also both entitled to Universal Credit in this interim period. The DLA are handing out short loans as the process takes 5 weeks and they will subtract a tiny bit of the hardship loan back each fortnight you are paid, so don't worry about that. If your husband is a freelancer, he will get nothing regarding business loan and you'd be better for Universal Credit as this is money you are entitled too and won't need to pay back. You might know mortgage and rent breaks are being offered for 3 months, I think everyone needs to push for utility companies to do the same...

[OstaraMoon in reply to Amusegirl]

Thanks so much, I didn't know about the rental that would help us so much as we are stuck but all this amazing advice I am going to try and get started on the applications so there will be some hope soon. I really appreciate it <3

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Im sorry you are going through this.not all anti inflamatory things are very expensive.i actually love this topic as my grand parents and grand grand parent ate an anti-inflamatory diet.it was part of their life.i love cool books from 100 years ago. one of the best things you can do for endo and its cheap is flax seeds. 2 tablespoons a day ,grounded.keep them in fridge.they are type called polyphenols .its feeding bacterias that modulate the immune sytem (by increasing butyric acid)and its also a good addition to soy. Another thing is green tea.in my culture i dont have that.we use peppermint tea.try 6-7 cups a day.these two will increase the number of autoimmune cells.

For pain and leasions, pycogenol is the king. If you invest in one supplement,make it that one. because of non malignant cancer,i would stay away from all sugar and fruits.

The king for cancer are brocolli sprouts.seeds must be cheap to buy.rhonda patrick has the instructions.they contain sulforophane which is very expensive to get in pill form.she also recommends putting them in boiled water which increases sulphorophane content. This is also good for endo.

If you find some spare money,please buy curcumin of type meriva. The meriva type is 4 times more bioavailable than normal curcumin.

This should help you enough until you have some money and see a good practitioner.

Hugs