Leg pain: Hi I just wondered if anyone... - Endometriosis UK

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Leg pain

Harry89 profile image
9 Replies

Hi

I just wondered if anyone experienced leg pain? My pain starts across my pelvis and then in my right hip flexor when the pain and uncomfortableness gets worse it goes down my right thigh and eventually to my shin, the majority of the time my right leg then feels stiff and sometimes numb?

I've had one lot of surgery already but am due for another scan in two weeks and it looks like more surgery is on the cards. A GP told me the leg pain had nothing to do with it but thankfully the xo sultans at the hospital acknowledged it.

Just wondered if I was alone in this type of pain?

X

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Harry89 profile image
Harry89
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9 Replies
Fabbird profile image
Fabbird

Yes, I think I get something similar. When the pain is bad it seems to run down into my legs. For me it usually starts with the left. Makes me feel wobbly and it's hard to walk.

staceymacg profile image
staceymacg

Mines gets very intense in my thighs during bad flare ups! Like you, the doctors don't believe me! X

Rosy42 profile image
Rosy42

Yes, happens to me too. Mine goes down the front and all round my thigh in a numb, tingling but sharp pain when things are really bad. Don't listen to the GP, it's definitely something that happens to other women I've talked to also. x

Jess204 profile image
Jess204

I get right sided pain that goes in my hip, back and down my leg when I have a big flare up. My gynaecologist told me it was the pressure? Xx

Harry89 profile image
Harry89 in reply to Jess204

The pressure? Xx

Jess204 profile image
Jess204 in reply to Harry89

Yes?? I have adenomyosis and I get that pushing down feeling, like everything is going to come out. Maybe that's what she meant but I'm not 100% sure. X

Moose28 profile image
Moose28

Oooh this is interesting. I get this on/ off and alway thought it was deferred pain from cystitas/ adhesions being irritated.

However recently diagnosed endo on a lap so actually it mosy likely is linked to that.

Sounds silly but the nervous system is a crazy thing I just wonder if this weird leg pain (mine goes to knee cap) has anything to endo being on the inside ligaments by ovaries and deferred from there.

kellymarie26 profile image
kellymarie26

I get leg pain. It's more like sciatica. From my last surgery I was told that my endo was sat on some deep nerves and that reflected the pain I was getting x

Cath77 profile image
Cath77

Yes, I get a very similar sounding pain routinely running down my left leg. My consultant has said it's endo related.

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