Endometriosis and its many forms.. - Endometriosis UK

Endometriosis UK

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Endometriosis and its many forms..

Sedgwick3 profile image
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Endometriosis wasn't the first thought when I turned 10 and got my first period. Except for the fact I bled every day for two years until doctors finally would see me after the continuous hospital visits to receive blood transfusions. I went through pads, thickest kinds, and even diapers. At that age, it was embarrassing and hard to cope. The pain was severe even the clots. My aunt had endometriosis, so we always informed the doctors who were careless. I was told to take 9 advil a day by a doctor even! After birth control, after birth control, after a few months each stop working and made me super sick. No one believed me at the time except for my mother who watched me suffer. I carried on, without a problem, the pain subsided (gotten use to it) and it was normal for me everyday. That was until before my 16th birthday, in less than a month I lost 30 pounds, now I eat like a horse and I was a good 132 lb naturally and 5'5". No matter what I ate, nothing solved it, and I was accused of starving myself. Something I definitely couldn't do (LOL). I told the doctors, my lower abdominal hurt severely, as often I had to miss school for these pains were unbearable and the bleeding made me too weak to move mostly. After the loss of weight that continued, I turned a grey green color that frightened my family, each thought I was dying. My hair began falling out, and I was vomiting everything I had. I immediately was sent to emergency exploratory surgery by the most wonderful OBGYN doctor I EVER was blessed to be seen by. I saw her for a little less than a year, but she was too frightened at my age to want to cut me open- as she said. Before the surgery she had just went to a seminar for endometriosis patients and different ways, methods to try. For the first time I was put into surgery, and I awoke feeling my whole body trembled as I was near death. I lost so much blood as I could hear my doctor frantically trying to finish and fixed what ever the damage that had me almost dying in general.

When I awoke, i asked hazily "What do I have?"

The nurse said, "Stage IV Endometriosis."

Half awake I didn't understand but more like was "HA! knew it!"

When I arrived back into my room, I was more frightened by the fact I didn't have any underwear on, and I started crying until my mom who is ill herself. She had Multiple Sclerosis and Cancer all throughout her body, but that beautiful woman stood beside me through it all, and she found my underwear.

The doctor showed my mom photos of all the tumors inside me, the funny well dry humor to this is

I use to beg and plead it wasn't around my "baby making" stuff and luckily there wasn't a single tumor

I use to say I wanted to have kids before 21, and my doctor estimated that is how long I have to have children because she is frightened that it would kill me next time it was to ever become so severe since my body was shutting down from so many tumors that tried to connect inside of me.

Whether it was god doing or a life lesson, I would never know.

But to this day, I hope people begin to believe no matter what age, people who are fighting through this hard battle..

I did take treatment only to get sicker because I mean giving a already hormonal teen menopause? got to be JOKING! I was more depressed, emotional, and rage than I was from the beginning!

Endometriosis, however, comes with many different side affects and pains.

Some unaware or choose to ignore, but No matter what the situation is, it isn't something so simple.

The weight loss/ gain

The frequent Urination/ urinating on yourself

The trouble sleeping

The Pain

The nausea/ vomiting

The bloating/ constipation

The abnormal periods/ clots

The Emotions/depression

The many many many more problems that occurs to women each day, I just want to thank and pray for all of you (Mothers, daughters, sisters, Aunts, Grandmothers) ALL OF YOU, for battling with Endometriosis every day, because only those who are so strong are capable of getting up and living life even when you feel like you have no one. There is someone.

Thank you for taking you time in reading this post...

I pray that each and every one of you have a wonderful life, and reach out to others as well on your stories..

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Sedgwick3
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Zelda5 profile image
Zelda5

I'm so sorry. Sounds like you've been through a lot. I pray that new and better advancements in how they treat Endo or better yet a cure in the future will prevent that from happening to anyone. Hope that you are doing better. 😊

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