Endometriosis UK
36,158 members32,136 posts

Sciatic endometriosis

Hi, I'm new to this, I have been suffering for months with sciatica, I've always had painful period and pain after sex(but not all the time)but made the connection with my periods, I'm awaiting an ultrasound and diagnosis of endometriosis, 8 have had lots of time off of work due to pain and exhaustion, would like to speak to people that can understand my daily struggle


5 Replies

Sorry you are suffering so.

However, the usual route for diagnosis of Endo is a laparoscopy. I'm guessing that the ultrasound is more to rule out other issues, although the trans-vaginal part of the process can spot some endo, in which case a lap would be the next step. However, if the ultrasound draws a blank I would be prepared to insist on a lap.

If you are diagnosed with Endo from the ultras, then come back on here for more guidance, or talk to the advisors at 'Endo UK' (link at the top of the page, leads to their site and phone and email details) as it's worth checking that your GP is following the appropriate route for the treatment of Endo. Sadly, lots of them (assuming you are in the UK) just refer people to general gynaes, when many should be seeing 'endo specialists' at BSGE Centres.

Hope this helps.

1 like

PS There are some wonderful exercises you can do for sciatica. Check out a really good physiotherapist - something must be causing it, and that needs dealing with, but the appropriate stretching exercises will help meanwhile.


Thank you for your helpful information


Sciatic endo is extremely rare but sciatica can be referred pain caused by endo. This can be particularly prevalent in adolescents (around 31% reported) probably due to some evidence that younger women seem to be presenting with severe deep endo from an early age - it is thought that an aggressive variant may possibly have evolved affecting that age group. Section 1 of the ESHRE guideline says:

'Adolescent women with endometriosis report a high rate of symptoms. Uterine cramping has been reported by 100%, cyclic pain 67%, non-cyclic pain 39%, constipation/diarrhea 67%, and referred pain (legs, back) by 31% of adolescents with laparoscopically diagnosed endometriosis (Davis, et al.,1993).'

However, women of any age may experience the symptom in association with deep endo and it can be caused by endo on the uterosacral ligament(s) behind the uterus referring pain to the sacral plexus where the sciatic nerve arises.

However, you are still at the 'suspected' stage so the important thing is to ensure you gain as much knowledge as you can and that proper procedures are carried out from now depending on what may be found. The introduction in the ESHRE guideline gives details of what symptoms should be looked for and include back and leg pain as referenced above. Section 1.3.1 details what should be done at a diagnostic lap, and a vital inclusion is a thorough exam with fingers to feel for deep nodules in the rectovaginal septum, including on the US ligaments. Note that if there are nodules felt (rectovaginal endo) and/or any other evidence of disease beyond stage 2 you must be referred to a BSGE accredited endo centre as confirmed in the NHS contract for treatment of severe disease.




1 like

Thank you for the helpful information x

1 like

You may also like...