Zolodex injections!!!

[Embobjimmyjam]

Hello ladies

I'm due to have my first zolodex injection on the 23rd of this month I'm just wondering what I can exspect or how others have got on with using this drug to treat endo???

Emj xx

[Winnifred1]

I also am due to have these injections and feel very nervous due to things I have read on the net (hair loss weight gain mood changes etc), however being in the immense pain I'm in right now at 4am AGAIN I guess I have to try it....so glad u put this question out there xx

[Holly26]

Hi Emj,

I was on it for four months to prep me for my hysterectomy. I was super anxious about the side effects, but the only thing that I suffered from was the hot flushes, mainly in the evening. No changes in my weight or hair loss. To be honest to worst part for me was the injections, but then I am a bit of a needle phob!

[Embobjimmyjam]

I'm not being treated by an endo specialist just Nhs consultant and doctors do you think it's worth getting referred?? the doctor I saw last week said there's little more they can do for me surgically as I want to have child in the next few years she said I could try these injections or be referred to pain management team xxx

[Winnifred1]

Sorry to jump on your post Embob I have been referred by my gp and am now being seen at the priory. Upon scans they cannot detect if I have endometriosis 100% I already have a lot of scar tissue in my tummy from a previous op and unsure if this affects what they see? However all my pain sign posts to endometriosis. My mum suffered for years with it also. The consultant wants to try zolidex over period of 3 months to see if it stops pain only then will they look to remove my ovaries. Due to being very poorly in hospital over the past few years I'm now so dubious about medical procedures and keep telling myself to put up with the pain until I get it again and it then I think I can't take the pain anymore. Any advice appreciated as I was actually supposed to start zolidex 4 months ago and keep putting it off....but know I can't carry on the way I am xx

[Winnifred1 in reply to Winnifred1]

Ps. Consultant reluctant to do laparotomy due to severity of scar tissue

[Winnifred1]

I will join....this is what worries me so much. I have already had a bad experience which resulted in what should be a simple op going wrong. My mom suffered endometriosis to the point she would pass out with the pain while I don't pads out I am sick with pain and everything I describe to my mom is the pain she used to have. I think I have the reservations I do about treatment because all the professionals I have seen seem sketchy. The consultant I am under said until I try the zolidex there is nothing further they can do to help me??

[Winnifred1]

Birmingham

[Philosophical]

I agree with Lindley. I tried Zolodex for a year and it didn't do anything for my endo although it did relieve the pain of not having periods. Good luck.

[Sammcb]

I had the zoladex for 6 months last year! It made such the difference. The hot sweats was probably the worst side effect. It definitely helped me and I even asked to do it for a year but my gyno refused and said unless I want the bones of a 70 year old woman, it was a no go! I did have hot sweats for about 4 month after the procedure but my god it was amazing to have no pain, lots of energy and no mood swings! I just felt better in general! However, everyone's experience is different. So unfortunately regardless of what any of us say you won't know until you try it. Some people have terrible side effects. Gain weight and go into depression. I on the other hand lost weight and it lifted my depression. It really depends on how your own body reacts to it!