Op note & pics (WARNING : Lap Pics Attached)

Op note & pics (WARNING : Lap Pics Attached)

Following my previous post about my laparoscopy today and how no endo was found, can anyone advise on what I should do now with this op note and pics? I'm going to get a second opinion but don't know how to go about doing it.

They've said everything from today is normal,. I know that people on here aren't doctors but I've attached some pics just in case anyone can help and advise on next steps, or sees anything from the op pics that may have been missed?

Not the clearest images as Just photocopies

Warning : graphic pictures attached from laparoscopy

27 Replies

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  • Do you have PCOS? I'm looking at your ovaries and that's what I see but I'm not sure.

    I'm seeing lot of veins which is a sign of a certain condition (can't remember what though).

    Here's an endo lap if you wanna look, and maybe if you can see anything in the photos that we can't here:

  • Yes I have PCOS, but apparently it doesn't cause pain. Thank you I'll have a look x

  • Endo also isn't supposed to cause pain when a ladies not on her period but it does for some people on the site. Like when a girl is on birth control.

    Maybe just maybe PCOS is the same way, here's the PCOS forum: healthunlocked.com/verity-pcos

  • I think you'll find when you look at the majority of people's comments on this site that Endo causes significant pain. If you don't have pain from endo, you're one of the very lucky ones. It has the power to obliterate people's lives. It very much causes huge pain, especially when painful adhesions are involved in more advanced cases. There is also no rhyme nor reason as some ladies only have a little bit of endo & can suffer terribly while some have more endo and don't have so many symptoms in some cases, but if you look at the overall picture, you'll find the majority of endo sufferers battle with significant pain which ruins their lives, and it's not just inflammatory pain, their battles can go on for many many years, especially if the endo remains undiagnosed for so long which is unfortunately common practice. So it's not really correct saying endometriosis isn't supposed to cause pain as that isn't true unfortunately.

  • I thought endo did cause pain so thank you for your comment, I don't know if I do or don't have it now as the lap was normal.. but I've been in debilitating , severe pain for around 5-6 years now so all the drs thought was endo but they couldn't find it, but I did have general Gynae so maybe that's why.. at least I know that endo can cause pain and can get second opinions to try and find out the cause of the pain :)

  • I typed that wrong I was trying to say it isn't suppose dot cause pain when a girl is on birth control but it does.

  • I've been on the pill for 5 months I've suffered for 6 years haha.

  • Oh I meant endo hurts all the time already, yeah I'm never gonna fix this post😂

  • Sorry that was an autocorrect I meant it's not supposed to cause pain on birth control pills

  • The most significant feature of endo is pain. If endo causes inflammation that in turn causes pain then endo causes pain. We are well aware of the links with endo and the release of pro-inflammatory factors such as cytokines and prostaglandins. Many other factors might be at work also such as the identification of increased numbers of nerve fibres in the endometrium of women with endo to probably account for more severe menstrual cramps. Endo is exquisitely complex and we still have so far to go in understanding but what we do know is that there are likely to be many mechanisms in place by which it causes pain.

    The above article isn't about endo. We have to consider why endo causes inflammation - it doesn't happen by accident. The pathogenesis itself causes the inflammation that then causes adhesions to further cause havoc within the pelvis to achieve endo's purpose whatever that is. In my view (since we now know it is an autoimmune related systemic disease) to prevent reproduction of the species by whatever means at its disposal.

  • Sorry that was a screw up I thought I typed it wasn't supposed to cause pain when a person doesn't have a period like when their on birth control but I know that's not true b/c every 1 of us seems to struggle while on the pill.

  • The thing is if you've been in pain for years then the pills not going to automatically stop the pain just like the coil doesn't, it takes ages to kick in.

    I'm not on the pill for birth control I'm on it to stop my periods however the do toes believe that I'm still probably having all the ovulation symptoms just no bleeding, so that could be a cause for the pain too :/

  • Yeah I get that too

    I'm not on it for BC either I'm not even sure if progesterone can be used as birth control since if you don't take it at the exact time you can get pregnant.

  • It can cause inflammation that can cause pain:

    nichd.nih.gov/health/topics...

  • Hannah I'm sorry but it causes a lot more than inflammation. Many of us have severely damaged organs (bladder, bowel, diaphragm, heart, lungs, even sciatic nerves in some cases etc. Etc.). The damage (often serious damage) is caused by lesions adhesions and nodules which are caused by the endometriosis. Believe me when your organs are affected you're in pain. Just as you would be if any other disease caused damage to them. I've never heard anyone medical or otherwise claim that endo doesn't cause pain before and really have to challenge that statement.

  • I meant it's not supposed to cause pain when a person doesn't have a period like when on birth control it was miscommunication

    That was for PCOS if you read the comment above

  • Morning sorry to hear all this sounds a nightmare. I'm currently waiting for a lap to diagnose Endo but can I ask before you were referred to the gynaecologist did you have blood tests and scans ? One of my blood tests came back sky high which is a sign of Endo and also a couple of cysts showed on my ovaries just wanted to ask as I'm worried in case they tell me the same thing as they've told you !!

  • Hi lovely I had internal and pelvic ultrasound and many blood tests, apparently nothing on my bloods was abnormal, the only thing was in July my platelets were 406 (the normal range is 400) and then in September we're 426.

    Apparently for myself this is normal, as I've had many chemotherapy as a child so my platelets will never be fixed as I'm prone to infections etc really easily.

    So for me this wasn't a worry, they didn't think it was cancer or anything sinister. If platelets are obviously in the thousands or a lot higher they'd be worried, or white cell count etc.

    I didn't have any ct or MRI which I hoped for, but apparently ultrasound was enough as they saw polycystic ovaries on it.

    Make sure you request the post op note etc , they have a right to decline giving you the images. They don't usually give patients a copy of the images but there were certain circumstances where the surgeon who did the procedure agreed to give me mine. You can ask but they may not give you them, if you have biopsies or samples taken request the histopathology too! Xx

  • Thank you that's really helpful - I really hope you get sorted and are eventually pain free xx

  • Thank you hun, I hope your lap goes well and you get more answers than I did, have you been dated yet? Please let us know how you get on!xx

  • Thanks I'm dreading it I hate hospitals but also know that I can't cope with this pain forever !! No date yet probably on a huge long waiting list xx

  • I know it may be difficult to get this done but can you ask to be referred to one of the endometrial specialist centres for a second opinion. Failing that contact a consultant at one directly and pay for a private consultation. I had to pay for a consultation after my last surgery because I knew from what they said that I had severe damage but the waiting list for my post op consultation at my local hospital was 5 months and then it would be another 2 months before they could get me on the books at the specialist centre to book my next op with them. It cost £200. That's a lot for me. I'm a single mum and have my own business so no guaranteed income which when you're ill is a problem. I managed to find the £200 though and saw the specialist within a week. If you could do that and show him or her your op photos, they'd be able to tell you if they agree or if they think it needs more investigation I'd have thought. If that was the case they'd probably tell you to ask your hospital to refer you to them on the NHS but if they agree that there doesn't seem to be endo present then you'd have peace of mind and could begin to explore other possibilities. I can only go on my own experience and it may be different for others, but in my photos the areas photographed are full of black dots and patches and the ovaries/bladder/bowel etc have thick black bands of scar tissue visible. If there's any way you can get these seen by an expert either on the NHS or by private consultation (if you can find the c£200) then you'd feel much more confident I'm sure. Good luck honey. It's crap feeling poorly all the time.

  • Thank you! I'm going to ask to be referred to a specialist centre in Cardiff where I'm moving to, and get a second opinion there, the docs have told me I have no scar tissue but everything looks really inflamed to me on the pics but my copies aren't the clearest as I'm not allowed the original pics. It's so frustrating, I'm not working at the moment due to relocating and the op but have interviews next week to get back to work so finding the 200 won't be a problem just means won't be til new year... worth doing though.. hope you find some answers too and aren't in too much pain! Big hugs , thank you for your help xx

  • Ahh thanks honey. I've had all my answers and now just hoping this next op gets me back to Normal..at least for a bit. Good luck with your interviews!! I hope you get it al sorted some. Very best. Molly x

  • Oh I hope it sorts you out and helps your pains and you get back to some normality, hope it comes through quick for you. Best wishes x

  • I would suggest getting an MRI because I had a laparoscopy in January they did find extensive endometriosis in the pelvic cavity where they have looked inside of you, they excised it but months later I did not feel any better I had an MRI and they found it all the way up the rectal vaginal wall which isn't visible from where they were looking. Just a suggestion. My private gynaecologist says Endometrial cells are minute and are so easily missed in fact they missed a bit inside me too, I've been on hormone treatments all year excruciating waves of contraction pains every day since and it looks like Im in for major surgery next year :( So any way endometriosis although rare can be found anywhere in the body and it's perhaps worth finding someone who specialises in endometriosis, I had to go private the NHS fobbed me off which is why my endometriosis has gotten so servere.

    I hope you find some relief soon xx

  • So sorry to hear this I hope you get the best treatment possible, I'm going to look into specialists and private consultations , can barely afford it but need answers... the pics to me look too inflamed. But I'm not a professional or a doctor so I don't know... hope you get sorted soon lovely it really is horrible xxx

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