Endometriosis UK
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Worried about endo returning

Hi, I'm just after a little bit of advise really and your experiences.

I had just under 2 weeks ago where I was diagnosed with endo on my uterus and bladder. I'm not sure of the grade. He said they will write to me with more information but I haven't had that letter yet.

I'm just wondered because he said I should be pain free and it shouldn't grow back for 5-10 years. I have been reading posts on here where it has grown back within months or a year - now I'm worried this will happen to me. How can he be sure it will be 5-10 years? I guess I should just enjoy the time pain-free that I have and stop worrying but it's difficult for me.

I took my dressing off today and everything looks OK. My abdomen feels different though. Is this possible? I used to have constant UTI's and I was so uncomfortable around my bladder. It is a weird feeling at the moment but I guess this is how it should feel pain free. I'm just not used to it.

Thank you. I hope you all have a good weekend!

5 Replies
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What your feeling is your body healing itself.What type of surgery? Excision or burning?

Burning results in it coming back since it doesn't remove all the tissue.

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I'm not sure exactly on the type. He didn't say and I'm waiting for my letter. I'm not sure how long it will take. I did have a doctors letter which just had the medication I was on and the dose etc and on there it says endometriosis ablation. Not sure if this means anything in particular? Thanks for replying to me

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It may come back since it was ablation not excision but if you are a stage 1 (which general gyn always misgrade the higher grades for) it may have worked. The later stages need excision.

If you don't mind me asking, when was your first menstaul period?

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I haven't had a period since my op. I have spotting but I'm not sure if this is my period or to do with the op and having the coil. I wish I knew which stage I was but I suppose it doesn't matter, at least they have removed it and I'm diagnosed x

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The thing is depending on the stage and where they found it they can't always remove it.

That's the coil, it's gonna take some getting used to: some bleed all the time and others have spotting to none at all.

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