Severe back pain spasm like only had surgery three months ago, I'm in agony


First of thank you to this wonderful community everybody's post have helped me so much. For the past three days I have had very severe lower back pain, that sometimes I think resembles a muscular pain and I'm also getting spasms. This has been the worst it has ever been , I nearly called an ambulance. My normal pain is to my left side however I do get a wide range of symptoms and have been very sick on and off in the years. I was eventually diagnosed with it this January following surgery initially symptoms got better with PRostap but they then came back). It's in my vagina, peritoneum, utero sacral ligaments & pouch of Douglas that I can remember! Apparently this all removed during the surgery so I can't understand why I'm like this, I am much worse now then I was before, I have also just started cerelle and I am bleeding or have spitting most days. Would back pain be the endometriosis or is it just as likely I have a separate condition ? I feel so down hearted at the moment. Sorry for the long post. Any input would be greatly appreciated.

9 Replies

  • I am so sorry to hear what you are going through. I can only comment from my personal experience but with my endo back pain had been the biggest/worst symptom. I believe for me it is due to severe endo on sigmoid colon and rectum but it can manifest as back pain from lots of places. Oddly enough I recently had a lap and my pain has increased tremendously ever since. I still need another surgery to remove the more extensive colo-rectal endo but the only change was removal so it doesn't make sense why there is suddenly dibilitating pain in my lower left back and front side. Although I did have the Mirena inserted during lap and have not really stopped bleeding since either so maybe that has something to do with it? I certainly understand what you're going through as I myself have been growing increasingly more frustrated trying to manage the pain. I hope you find some answers and relief soon! If you have any questions or just want to chat feel free to reply or message me whenever.

    Best of Luck!


  • Thanks for your reply, I was told all of mine was removed so not sure why I feel worse, I just know it feels worse as each month goes by. Yours sounds horrible though especially if you waiting on more surgery. Hope you get some relief soon x

  • I had a large haemorrhagic endometrioma that was sat on a nerve that caused severe back pain have you have a scan since your op?

  • No, I am waiting on a referral back to a different specialist this time. Would it have not been found during the lap? All of this is so confusing ha

  • How long ago was your lap? My surgery was only 4 months previous to the cyst being found. X

  • Three months ago. Gosh really, I'm so surprised! How did you go about going back and getting help then so quick after the surgery, that's what I tend to be having a problem with x though just got a referral just don't know when for x

  • I was having regular scans and blood tests due to cells that were found during my lap I had planned surgery but it ended up being an emergency as the cyst was in the nerve and I was unable to walk x is your pain just in your back or does it travel? X

  • If your really struggling I would suggest calling your consultants secretary and asking if they can bring it forward due to extreme pain x

  • That's a good idea, thanks for your time and support. I hope you have a better few rest if the year ahead of you x X

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