Severe back pain spasm like only had surgery three months ago, I'm in agony

[Samqueens2310]

Hi,

First of thank you to this wonderful community everybody's post have helped me so much. For the past three days I have had very severe lower back pain, that sometimes I think resembles a muscular pain and I'm also getting spasms. This has been the worst it has ever been , I nearly called an ambulance. My normal pain is to my left side however I do get a wide range of symptoms and have been very sick on and off in the years. I was eventually diagnosed with it this January following surgery initially symptoms got better with PRostap but they then came back). It's in my vagina, peritoneum, utero sacral ligaments & pouch of Douglas that I can remember! Apparently this all removed during the surgery so I can't understand why I'm like this, I am much worse now then I was before, I have also just started cerelle and I am bleeding or have spitting most days. Would back pain be the endometriosis or is it just as likely I have a separate condition ? I feel so down hearted at the moment. Sorry for the long post. Any input would be greatly appreciated.

[Adeb1990]

I am so sorry to hear what you are going through. I can only comment from my personal experience but with my endo back pain had been the biggest/worst symptom. I believe for me it is due to severe endo on sigmoid colon and rectum but it can manifest as back pain from lots of places. Oddly enough I recently had a lap and my pain has increased tremendously ever since. I still need another surgery to remove the more extensive colo-rectal endo but the only change was removal so it doesn't make sense why there is suddenly dibilitating pain in my lower left back and front side. Although I did have the Mirena inserted during lap and have not really stopped bleeding since either so maybe that has something to do with it? I certainly understand what you're going through as I myself have been growing increasingly more frustrated trying to manage the pain. I hope you find some answers and relief soon! If you have any questions or just want to chat feel free to reply or message me whenever.

Best of Luck!

Amanda

[Samqueens2310 in reply to Adeb1990]

Thanks for your reply, I was told all of mine was removed so not sure why I feel worse, I just know it feels worse as each month goes by. Yours sounds horrible though especially if you waiting on more surgery. Hope you get some relief soon x

[Lilit49]

I had a large haemorrhagic endometrioma that was sat on a nerve that caused severe back pain have you have a scan since your op?

[Samqueens2310 in reply to Lilit49]

No, I am waiting on a referral back to a different specialist this time. Would it have not been found during the lap? All of this is so confusing ha

[Lilit49]

How long ago was your lap? My surgery was only 4 months previous to the cyst being found. X

[Samqueens2310 in reply to Lilit49]

Three months ago. Gosh really, I'm so surprised! How did you go about going back and getting help then so quick after the surgery, that's what I tend to be having a problem with x though just got a referral just don't know when for x

[Lilit49 in reply to Samqueens2310]

I was having regular scans and blood tests due to cells that were found during my lap I had planned surgery but it ended up being an emergency as the cyst was in the nerve and I was unable to walk x is your pain just in your back or does it travel? X

[Lilit49]

If your really struggling I would suggest calling your consultants secretary and asking if they can bring it forward due to extreme pain x

[Samqueens2310 in reply to Lilit49]

That's a good idea, thanks for your time and support. I hope you have a better few rest if the year ahead of you x X