I have been suffering from severe endometriosis for many years, but in November 2015, I began having severe pain due to an endometrioma on my left ovary and fallopian tube. I had a laparoscopy in February when the endometrioma was drained and adhesions removed. Three to four weeks after surgery the pain returned and recently the pain skyrocketed. I have since had a scan and the endometrioma has returned and another one has formed, which are both pushing up against my peritoneum, which the Dr. mentioned can cause pain similar to that experienced with appendicitis.
Given abysmal care on the NHS, I have met with a private endometriosis specialist/surgeon, who has indicated that I am likely to have two options (to be confirmed with the next scan, which is scheduled for today). I can have my ovary removed OR I can have a hysterectomy. The latter is likely to give me a better longer-term option but of course comes with more risk - risk from a more complicated surgery, but also breast cancer risk given my family history if I should take HRT. I am 42yo and do not want children so saving my ovaries for fertility reasons is not a concern.
I also have the option to have this done on the NHS, though the wait time would be 6-12 months. The thought of being in this much pain and having to take such powerful painkillers for 6-12 months longer is depressing - I already feel like my life has been largely on hold since November 2015.
The other option is to have this done privately, which I would have to self-pay at the cost of about £10,200. As I received such terrible after care from my surgery in February, I would likely pay for private recovery anyway.
I would like to hear experiences from those who have pursued these options - Hysterectomy vs. ovary removal and NHS vs. private.
I would also be keen to learn about pain coping mechanisms in the meantime. I find I am ultra-irritable - noises especially drive me mad; I am less ambitious professionally; and generally unsure about the future, etc.
Thank you for your help!